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Steven Schutzer was one of the Lyme contingent of the collaborative effort involving Natelson (ME/CFS) and Fallon(Lyme) and Coyle(Lyme) that resulted in this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3044169/

Interesting that both Natelson and Schutzer were in the audience and asking questions. Natelson, I get why he'd be there. Schutzer, not so much.

I wonder why Walitt excluded the post Lyme control group data when comparing results.

It's happening in Houston, Texas. Let me see if I can conjure a link to a good article or two describing it. This author was nominated for a Pulitzer for her investigatory research into Lyme...

27 plaintiffs. Yes, or because they are so siloed, particular departments/disciplines.

I know, right? I'm such a dick. :) You want to know what I know? PM me.

You have no idea. I could tell you shit that would curl your hair. But, eh. ...

Does this count? https://www.lymedisease.org/idsa-lawsuit-pfeiffer/

Really? To the Houston lawsuit? Ok. Let me find it. You do know you can google it..lol

Well, no, the first step arguably is realizing the NIH thinks you're dopes. :)

Yes. Sorry. This is a big deal. Should I do a link thingee? Lyme patents are suing like three insuance companies and the IDSA and 8 or so Lyme authors of the Lyme Guidelines that pretty much all Euro countries - especially the UK! - subscribe to.

Oh, it's ok:) So, Lyme patients finally have tried to hold the asshole architechts of their lives accountable via the courts. They may actually win, but it's far too early to make that call. It IS different in that who do we charge? But, why cant we figure that out??

What did the Lyme patients do? It's different. But why cant we try to hold them responsible?!?

Economy. Savings. Not necessarily to distinguish, but to characterize.

Therapeutic nihilism? Like, "First, do no harm"?

Just as long as the trial is elegant.

The NIH and CDC's stranglehold on what does or does not happen vis-a-vis contested diseases like ME/CFS may be challenged by the outcome of the Lyme RICO trial going on right now in Houston. That case pits 27 Lyme patients against several Insurance Carriers and the authors of the IDSA Lyme...

I'm not sure the plunging grant application rates were needed to test the NIH's commitment to ME/CFS. I just think of the NIH's own ME/CFS study which combined elements of the psych brigade with the Lyme crew; that spoke volumes to some about the NIH's commitment to ME/CFS. You still want...

Oh, I don't know that I'd lead with "profound fatigue". Isn't part of the effort educating Congress - as well as practically everyone else - that ME/CFS is not chronic fatigue? By listing it first, you're arguably re-enforcing the wrong message. I am fearful some individuals may stop reading...

Maybe they are testing for the wrong things in a subset. I've done a 2 Day CPET test. I started PEMing before I even reached the testing center, and was still PEMing on Day 1 of testing - all due to traveling. But I didn't feel it in my muscles, I felt it in cognitive decline and a weird poison...