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  1. Arnie Pye

    The Effects of Messaging on Long COVID Expectations: An Online Experiment, 2022, Mills et al

    From the paper linked in post #1115 : They might as well have said : The views expressed are those of the author(s) and not necessarily those of the NIHR, UKHSA or the Department of Health and Social Care but we all know they will be once those organisation find out if they save money and...
  2. Arnie Pye

    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    Another issue for women in relation to iron is that once a woman is past menopause doctors assume they can't be deficient in iron, which is total nonsense.
  3. Arnie Pye

    Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al

    I'm guessing here, but I would guess that many patients with FM are probably on anti-depressants. Alexithymia often affects people on anti-depressants. Doctors shove anti-depressants at women obsessively and FM is one of those conditions often assumed to be rooted in depression. Harm...
  4. Arnie Pye

    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    Back pain - is poorly treated in both men and women. Patients of both sexes get told they have "lumbago", need more exercise, should sit less, eat less, and move more. Using an n=1 sample (my husband) an obvious difference between the treatment of back pain in men and women is that men are...
  5. Arnie Pye

    Subjective Cognitive Dysfunction in Patients With and Without Fibromyalgia: Prevalence, Predictors, Correlates, and Consequences, 2022, Wolfe et al

    I'm confused. This paper refers to Subjective Cognitive Dysfunction. Who is declaring it to be subjective? The patient or the researcher?
  6. Arnie Pye

    GERD, acid reflux, heartburn and hiatus hernia

    I have tried a wedge pillow/cushion in the past and hated it. I somehow ended up bent in the middle and it very quickly became, firstly, uncomfortable, and then excruciating. I have acid reflux and severe heartburn and raising the head of my bed worked much better for me than a wedge, and it...
  7. Arnie Pye

    BBC article: Specialist mental health unit failures exposed by patients

    One problem with the mental health sector is that more and more private companies, several of them US-based, have managed to get contracts in the UK to provide mental health services. And if your profits depend on not releasing patients then you simply don't release them. Some rather old (2017 /...
  8. Arnie Pye

    Long COVID risk - a signal to address sex hormones and women's health, 2021, Stuart Stewart et al

    From the link given by @Wonko : I really don't believe that the combination of symptoms given is unique to perimenopause and menopause. But doctors and researchers believe that women are slaves to their hormones, don'tchaknow, so something to do with periods must be the answer to all their...
  9. Arnie Pye

    Functional Neurological Disorders - discussion thread

    I'm replying to a reply from 2020, but just wanted to point out that research by Professor James Malone-Lee has moved things on a bit with regard to testing for and treating UTIs. Unfortunately I don't think the NHS has taken it on board - it would cost a lot more than the "five days of...
  10. Arnie Pye

    Psychological Predictors of Self-reported COVID-19 Outcomes: Results From a Prospective Cohort Study, 2022, Ayling, Chalder et al

    Can someone please sack these people and spend the money that becomes available on doing biomedical research. These people are simply a waste of funding and air.
  11. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    From the healthline link I'm amazed that San Marino and Cyprus have such high levels, being so far south. But then San Marino apparently has fewer than 35,000 people living there so perhaps there is a cluster of people with an unfortunate genetic makeup which makes them more likely to get MS.
  12. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    Ooh, good point! I found this from the MS Trust in the UK, which may be of interest : https://mstrust.org.uk/a-z/how-common-multiple-sclerosis And for something more detailed [at least in some respects]- The Multiple Sclerosis International Federation, Atlas of MS, 3rd Edition (September...
  13. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    The article linked by @Mij has this comment : But I have also read this in the past : Title : Multiple sclerosis in the Orkney and Shetland Islands. I: Epidemiology, clinical factors, and methodology. Link : https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC1052085/ I don't have numbers...
  14. Arnie Pye

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I think the clinics are carrying on regardless as far as I can tell. They've just changed the name from Graded Exercise Therapy to Graded Activity Management or come up with their own name. So, instead of one "treatment" to avoid i.e. GET, people now have to be wary of potentially dozens more...
  15. Arnie Pye

    Assessment of Functional Mobility After COVID-19 in Adults Aged 50 Years or Older in the Canadian Longitudinal Study on Aging, 2021, Beauchamp et al

    [Tongue in cheek] I wondered if "Functional" (in the title) was being used in the way that the general population uses the word or how doctors use the word in "FND", but I couldn't make the FND usage make sense in any way at all. So it suggests that it is being used in the "normal" way.
  16. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    I was referring specifically to Long Covid. Duloxetine/Cymbalta has a reputation as one of the worst anti-depressants for prolonged SSRI discontinuation syndrome/post-acute withdrawal syndrome there is, as well as some very unpleasant adverse effects. As someone who has gone through this...
  17. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Blood clots in the lungs? Or the heart? Chest pain? The gut? Diarrhoea? I'm sure there are many other symptoms of Long Covid than those above, and some of them may have a cause lying in the brain, I'm not denying that. But prioritising the brain rather than the lungs or the heart or the gut or...
  18. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Methylphenidate, Duloxetine, and Brexpiprazole - these can otherwise be described as Ritalin, Cymbalta, and an atypical anti-psychotic - also described in Wikipedia as 'a dopamine D2 receptor partial agonist and has been described as a "serotonin–dopamine activity modulator" (SDAM)'. It would...
  19. Arnie Pye

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    What a flaming liar! Yes they do! [Edit : I was referring to the comment that they don't judge behaviour.]
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