Search results

  1. Arnie Pye

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    I know this thread and the poll is no longer current, but in case anyone is interested I just found a website with un-watermarked pictures which are free for anyone to use. https://unsplash.com/
  2. Arnie Pye

    GERD, acid reflux, heartburn and hiatus hernia

    My brain is struggling to take that sentence in. Is it saying that people who smoke have more stomach acid than those who don't smoke? That amazes me. It's suggesting that smoking might be good for something in certain people. :O I was told by my GP over 20 years ago that my gut problems...
  3. Arnie Pye

    GERD, acid reflux, heartburn and hiatus hernia

    Do you mean you took Betaine HCL or Betaine HCL with Pepsin in capsule form, or something else? There are various rules to be followed to get the right dose and to make sure it is taken under the right circumstances. When taken under the wrong circumstances it can make problems worse. How to...
  4. Arnie Pye

    GERD, acid reflux, heartburn and hiatus hernia

    As people age they produce less and less stomach acid. And yet who are the people most likely to be on acid-blocking or acid-reduction medications like PPIs? The elderly. And people who take PPIs are told they are necessary to reduce levels of stomach acid. The lack of logic is glaring but is...
  5. Arnie Pye

    COVID-19 infection causing residual gastrointestinal symptoms – a single UK centre case series, 2022, Cooney et al

    So, Covid is recognised as causing problems in the lungs, the brain, it affects women's reproductive organs, it has gastrointestinal effects, causes problems with the kidneys, causes fatigue... But ME? That [Edit : allegedly] only causes fatigue, they never pay attention to anything else...
  6. Arnie Pye

    Oral Bacteriotherapy Reduces the Occurrence of Chronic Fatigue in COVID-19 Patients, 2022, Santinelli et al

    I thought that the best probiotics had to be "live". Covid, which would (as far as I know) usually be accompanied by a fever, would probably kill off any "good" bacteria swallowed by the patient.
  7. Arnie Pye

    Outcomes in post-acute sequelae of COVID-19 (PASC) at 6 months post-infection part 2: Psychological functioning, 2022, Whiteside et al

    I hate that word "distress". It's like a beacon to the reader - BPS gaslighting here...
  8. Arnie Pye

    Lyme disease: Man spent £25,000 before getting diagnosis

    Title : Lyme disease: Man spent £25,000 before getting diagnosis Link : https://www.bbc.co.uk/news/av/uk-wales-60202952 There is a short video on the link above of the man talking about what happened to him.
  9. Arnie Pye

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    I've been prescribed two TCAs for chronic pain and had to give both up PDQ. They both raised my heart rate - the first one to 150 bpm and the second one to 135 bpm, and it went on 24 hours a day for me too. It is a recognised side effect according to the Patient Information Leaflets I was...
  10. Arnie Pye

    Serum Metabolic Profile in Patients With Long-COVID (PASC) Syndrome: Clinical Implications, 2021, Pasini et al

    No, I hadn't seen that. Link : https://www.frontiersin.org/articles/10.3389/fmed.2021.714426/full Title : Serum Metabolic Profile in Patients With Long-COVID (PASC) Syndrome: Clinical Implications I found this bit from the Abstract interesting : These patients appear to have Anaemia of...
  11. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So, the majority of LC sufferers are coming from a group of women who are of an age to have started their periods in the previous 10 years up to and including women who may have stopped having periods in the previous 10 years. I wonder how many of them were iron deficient before they got Covid?
  12. Arnie Pye

    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    When I complained of intolerable pain I was told that all I needed to do was get pregnant. I was also told not to wait until we had a bigger TV or a second car, but to try now and this would cure my pain. I always found this kind of comment insulting and a way of trivialising what was wrong with...
  13. Arnie Pye

    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    I've only just realised this is an article/paper written by a student who is hoping to get a PhD. Not that that makes it acceptable. In some ways it makes it worse. It makes it clear that (presumably) young students are getting drilled in switching cause and effect, how not to have any empathy...
  14. Arnie Pye

    Lightning Process - discussion thread

    Merged thread Toxic Positivity: My experience of the ‘lightning process’ Edit : I've just realised that my post and its title implies that I wrote the reddit post. I want to make it clear that this is not my reddit post! I've never done LP and have no plans to either. ... Posted on Reddit on...
  15. Arnie Pye

    Protocol: Understanding and restoring dopaminergic function in [FM] patients using a mindfulness-based psychological intervention, 2021, Ledermann

    They are paying people to take part in some luck-based totally pointless "game". In what way can this be adapted to real life? It sounds like total nonsense to me.
  16. Arnie Pye

    Diagnosis and management of functional neurological disorder, 2022, Aybek and Perez

    There is no end to the number of medical conditions that can be disbelieved, dismissed, and left untreated if FND is now a "rule-in" diagnosis.
  17. Arnie Pye

    Brain Structural Changes during Juvenile Fibromyalgia: Relationships with Pain, Fatigue and Functional Disability, 2022, Sunol et al

    For those, like me, who have never heard of it before : https://en.wikipedia.org/wiki/Voxel-based_morphometry
  18. Arnie Pye

    Pelvic Congestion Syndrome

    I could have got the wrong end of the stick here about your condition. But if you have endometriosis you could well have adhesions or scarring as a result. They are more likely to squeeze blood vessels and possibly pull or distort nerves and blood vessels.
  19. Arnie Pye

    Pelvic Congestion Syndrome

    "Pelvic congestion syndrome" is not a term I've come across very often but when it is used it seems to be used in much the same way that FND or primary dysmenorrhea is i.e. as a term used in gaslighting women who have severe gynaecological pain from conditions like endometriosis that the doctor...
Back
Top