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"Participants were excluded if they had certain comorbidities like major sleep disorders, chronic fatigue syndrome, respiratory, cardiovascular or metabolic disorders or physical traumas with hospitalization in the past 3 months, diagnosis of cancer in the past 3 years, major psychiatric...

Problems with fatigue and sleep are highly prevalent in patients with chronic diseases and often rated among the most disabling symptoms, impairing their activities of daily living and the health-related quality of life (HRQoL). Currently, they are evaluated primarily via Patient Reported...

I believe that sending out a press release given to them to their media contacts is their regular level of support, so I wouldn't be surprised if they had (they were interested in doing so for the launch of DecodeME). I was more referring to the lack of a 'roundup' or 'rapid reaction' which they...

Rosmalen isn't either.

Maybe, but I would have thought that if they wanted to support the awareness of this opinion piece then they could have found a couple of people to speak in favour of it. Or perhaps there was no attempt made to get them interested in it, whatever the case it's unlikely that we will ever know for...

Still nothing on the SMC's website.

Make brain scans routine for new psychosis patients, experts say Study finds MRI scans led to different diagnosis or change in care in 6% of cases https://www.theguardian.com/science/2023/jul/12/make-brain-scans-routine-for-new-psychosis-patients-experts-say

Key Points Question How common are neuroradiological abnormalities in first-episode psychosis? Findings In this systematic review and meta-analysis, we found approximately 6% of patients with first-episode psychosis had an abnormality that required a change in clinical management. The number...

MEAction UK’s Response To The Guardian Article 11 July 2023 https://www.meaction.net/2023/07/11/meaction-uks-response-to-the-guardian-article-11-july-2023/

Abstract Fatigue, characterised by lack of energy, mental exhaustion and poor muscle endurance which do not recover following a period of rest, is a common characteristic symptom of several conditions and negatively impacts the quality of life of those affected. Fatigue is often a symptom of...

NICE guideline is robust and globally supported "On 11th July, a new study was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member...

Blog from Brian Hughes. The cries for help are getting louder. And that’s a good sign "The JNNP article is little more than a self-serving letter to a friendly editor, infused with special pleading and groupthink. It has no standing other than as a work of academic contrarianship. It is a cry...

Trial By Error: Dutch Team Offers “Dog-Ate-My-Data” Excuses for Not Reporting Null Objective Findings https://virology.ws/2023/07/11/trial-by-error-dutch-team-offers-dog-ate-my-data-excuses-for-not-reporting-null-objective-findings/

Many of them are keen on labelling ME/CFS as a functional condition, and many are keen on using CBT and physiotherapy as 'treatments' for functional conditions, so to have NICE show that the evidence base for CBT and GET for ME/CFS is severely lacking undermines their position.

Notably, at least at time of me posting this, there was nothing about this on the Science Media Centre's site, https://www.sciencemediacentre.org/working-with-us/for-journalists/roundups-for-journalists/

Archived version here, https://web.archive.org/web/20230711064123/https://www.theguardian.com/society/2023/jul/11/chronic-fatigue-guidance-discouraging-exercise-is-flawed-say-researchers Using this link rather than the original will help the original sink faster out of view.

How does their membership criteria prevent them from potentially coproducing anything? That makes no sense to me, I'm not a member of the University of Edinburgh but I am part of the team that is coproducing DecodeME - you don't need to be in the same organisation to coproduce something.

Their criteria is "Membership of BACME is open to UK-based healthcare professionals and researchers involved in the diagnosis and/or treatment of ME/CFS using clinically effective practice." as shown here, https://bacme.info/join/ If you meet that criteria then you have grounds to be...

"All pathological conditions included in the functional somatic syndrome, such as fibromyalgia, chronic fatigue syndrome, chronic pain, and irritable bowel syndrome were significantly more frequent among patients with panic disorder."

Objective To assess the prevalence of panic disorder during the second and third waves of the COVID-19 pandemic. Design Cross-sectional multicenter study. Setting Primary care. Participants Participating primary care physicians selected patients visiting their primary care centers for any...