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We're are obviously delighted that she's so keen to take part. The kits are sent out in batches, and then the Royal Mail have to get it to you, so sadly it isn't as quick as we would like. If it hasn't turned up by the end of next week then send the team an email at info@decodeme.org.uk and they...

It's only just been three full weeks since we sent out the invitation. Has she clicked on the button in the invitation email to indicate that she would be happy to donate a DNA sample?

Yes, from the abstract this looks like the usual misunderstanding from sympathetic outsiders, who don't seem to have actually spoken to any ME patients.

Published papers thread for w/c 10th July Facebook: https://www.facebook.com/sci4me/posts/pfbid0BNwAWkMbaSrroEkiYAH49vN6vnq71HK2YrGeAbKHyQXwDLw8yVnqM98qY1WcVk2Ml Mastodon: https://med-mastodon.com/@s4me/110728442377742229

Our thread on COFFI, COFFI - The international collaborative on fatigue following infection

Objectives To establish proof of concept of a prehabilitation intervention, a combination of education and behavioural change, preceding a physical activity programme in people with fibromyalgia (FM). Settings Open-label, feasibility clinical trial. Participants Eleven people with FM...

News in Brief posts for w/c 10th July Facebook: https://www.facebook.com/sci4me/posts/pfbid02bqaAEwpjppQ7mVaiEYoBFEijyMk9w5RgShXdyY6mB7B7ozi2UweokraBhMaZtKaYl Mastodon: https://med-mastodon.com/@s4me/110723421315701626

Yeah, the fact that it is a review is tucked away in the text. "In this review we have attempted to integrate the many published papers connecting the immune system to the post-viral fatigue syndromes, ME/CFS and LC. The study design was to review the ME/CFS and LC literature and to provide as...

More detail from the site. "What is Long X? Long X refers here to the broad family of post-acute infection syndromes including Myalgic Encephalomyelitis (ME), chronic Long Covid, and other chronic outcomes apparently triggered by infection including Postural Orthostatic Tachycardia Syndrome...

Other authors include Vincent Deary and Christopher Burton. Highlights Medical consultations for persistent (“medically unexplained”) physical symptoms present particular challenges Symptoms can be explained as central and peripheral processes; however these explanations are rarely used in...

Abstract Background: Cardiopulmonary exercise testing (CPET) has been suggested by the European Society of Cardiology (ESC) for assessing the exercise limitations of apparently healthy individuals, but data on elite athletes regarding this test are scarce. Methods: We analyzed CPET in elite...

Full title: Association of digital measures and self-reported fatigue: a remote observational study in healthy participants and participants with chronic inflammatory rheumatic disease Background: Fatigue is a subjective, complex and multi-faceted phenomenon, commonly experienced as tiredness...

Abstract Viral infection in most people results in a transient immune/inflammatory response resulting in elimination of the virus and recovery where the immune system returns to that of the pre-infectious state. In susceptible people by contrast there is a transition from an acute immune...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS) are two complex and multifactorial diseases whose patients experience persistent fatigue, cognitive impairment, among other shared symptoms. The onset of these diseases has also been linked to acute...

Objective Whereas genetic susceptibility for systemic lupus erythematosus (SLE) has been well explored, the triggers for clinical disease flares remain elusive. To investigate relationships between microbiota community resilience and disease activity, we performed the first longitudinal...

"All the individuals were free of (lifetime and current) axis-1 neuropsychiatric disorders including a major depressive episode, schizophrenia, bipolar disorder, psycho-organic disorders, substance-use disorders (except nicotine dependence), medical disorders including chronic fatigue syndrome...

Introduction Approximately 15% to 40% of persons with chronic pain as a primary disorder experience brain fog. Prior research has investigated the etiology of “brain fog” in conditions in which pain presents as a key feature (e.g., fibromyalgia). However, it remains understudied in the context...

Myalgic encephalomyelitis (my-AL-gic en-SEH-fuhlow-MY-uh-LIE-tus)/chronic fatigue syndrome (ME/CFS) is a chronic, severe, possibly disabling disorder. It can cause inflammatory, neurologic, immune, and metabolic problems that are not well understood. More at...

Fatigue is among the top 10 reasons patients visit primary care offices, and it significantly affects patients' well-being and occupational safety. A comprehensive history and cardiopulmonary, neurologic, and skin examinations help guide the workup and diagnosis. Fatigue can be classified as...

Article from one of the study centres. Wearable technologies can reliably measure fatigue and disturbed sleep in chronic disease https://www.newcastle-hospitals.nhs.uk/news/wearable-technologies-can-reliably-measure-fatigue-and-disturbed-sleep-in-chronic-disease/