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  1. Andy

    Trisha Greenhalgh on ME/CFS and Long Covid

    If anybody has any interest in being unblocked by TG on Twitter.
  2. Andy

    News from Portugal

    Copied from News from South America "We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community." "#MillionsMissing Aliança has a public facebook group for the...
  3. Andy

    News from South America

    "We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community." "#MillionsMissing Aliança has a public facebook group for the moment. Join it...
  4. Andy

    SMART Pharmacists Serving the New Needs of the Post-COVID Patients, Leaving No-One Behind 2023 Šipetić et al

    Abstract This study aims to demonstrate the improvements in clinical symptoms in patients with post-COVID syndrome after a community pharmacy-based intervention in Serbia. The Pharmaceutical Chamber of Serbia (“Chamber”) invited pharmacists to deliver post-COVID patient care counselling...
  5. Andy

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Trial By Error: An Update on the Missing Ethics Corrections in Multiple Esther Crawley Papers "In 2019, the University of Bristol and the UK’s Health Research Authority issued a report about their joint investigation of 11 papers. The lead investigator of all 11 papers was Professor Esther...
  6. Andy

    Finland: 2023 Helsinki University Long Covid conference

    Opinions overtook science at HUS Long Covid symposium "On 16 March 2023, HUS organized the international Long Covid symposium ”Navigating the unknown: Exploring Realities and best practices on Long Covid”. About 100 people were present, mainly physicians, among whom were representatives from...
  7. Andy

    Spain: Predoctoral Fellowship: Pathomechanisms of Myalgic Encephalomyelitis, Fibromyalgia and Long COVID‐19. Applications close 31st May 2023

    "Research group: Gene expression and immunity Catholic University of Valencia (UCV), Valencia, Spain https://www.ucv.es/investigacion/grupos‐de‐investigacion/grupoclave/1435 Availability of a UCV sponsored predoctoral fellowship towards the completion of a Doctoral Thesis degree in the...
  8. Andy

    Exercise-induced changes in gene expression do not mediate post exertional malaise in Gulf War illness 2023 Boruch et al

    Highlights • Gulf War Veterans with GWI experience PEM. • GWI had significantly lower post-exercise ACTB, COMT, and TLR4 gene expression. • Gene expression did not mediate symptom post-exercise symptom exacerbation. • Post-exercise gene expression differs from responses reported in ME/CFS. •...
  9. Andy

    Trial Report Possible Markers For Myalgic Encephalomyelitis / CFS Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I,2023,Yamamoto

    Merged thread, link and abstract added to post https://academic.oup.com/jes/article/7/Supplement_1/bvad114.1370/7290078 THU581 Possible Markers For Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I...
  10. Andy

    Long Covid in the media and social media 2023

    "I stand by my words - I'd be lost without all the support from #pwME - you're genuinely wonderful and so generous. I stumbled on this webpage early on in my #LongCovid journey and #stoprestpace quickly became an essential part of every hour of every day!"
  11. Andy

    What do I need to know about Long-Covid-related Fatigue, Brain Fog, and Mental Health Changes? 2023 Gross et al

    Introduction Many people who became ill with COVID-19 continue to experience symptoms over long periods of time. Generally called “Long COVID,” this condition has been given a more formal medical name: Post-Acute Sequelae of Sars-CoV-2, or PASC. There are many symptoms associated with Long...
  12. Andy

    Digital cognitive behaviour therapy for insomnia in individuals with self-reported insomnia and chronic fatigue: 2023 Ramfjord et al

    Summary Insomnia is associated with fatigue, but it is unclear whether response to cognitive behaviour therapy for insomnia is altered in individuals with co-occurring symptoms of insomnia and chronic fatigue. This is a secondary analysis using data from 1717 participants with self-reported...
  13. Andy

    Pathogenic mechanisms of post-acute sequelae of SARS-CoV-2 infection (PASC) 2023 Sherif et al

    Abstract COVID-19, with persistent and new onset of symptoms such as fatigue, post-exertional malaise, and cognitive dysfunction that last for months and impact everyday functioning, is referred to as Long COVID under the general category of post-acute sequelae of SARS-CoV-2 infection (PASC)...
  14. Andy

    Preprint: Treatment of Long COVID symptoms with triple anticoagulant therapy 2023 Laubshder, Pretorius et al

    Despite what we might be accused of, I, and others on this thread, are perfectly capable of holding two thoughts. One, that the idea of microclots is worth investigating, even if just to rule it out, and two, that in order to do so it will actually need more than just a series of case reports...
  15. Andy

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    Discussion thread here, Fibromyalgia patients with elevated levels of anti–satellite glia cell immunoglobulin G antibodies present with more severe symptoms 2023 Krock et al
  16. Andy

    Article: ‘I worry my young patients will die’: UK’s eating disorder services not fit, say GPs

    "Young people with eating disorders are coming to harm and ending up in A&E because they are being denied care and forced to endure long waits for treatment, GPs have revealed. NHS eating disorders services are so overwhelmed by a post-Covid surge in problems such as anorexia that they are...
  17. Andy

    Fibromyalgia patients with elevated levels of anti–satellite glia cell immunoglobulin G antibodies present with more severe symptoms 2023 Krock et al

    Transferring fibromyalgia patient immunoglobulin G (IgG) to mice induces pain-like behaviour, and fibromyalgia IgG binds mouse and human satellite glia cells (SGCs). These findings suggest that autoantibodies could be part of fibromyalgia pathology. However, it is unknown how frequently...
  18. Andy

    A Scoping Review of Digital Interventions that Treat Post-/Long-COVID 2023 Rinn et al

    Background: Patients with Post-/Long-COVID need support, and health care professionals require clear evidence for their work with patients. Digital interventions can meet these requirements, especially if personal contact is limited. Objective: We answered the question of what the current...
  19. Andy

    Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder 2023 Van der Feltz-Cornelis, Moriaty and Strain

    Previous publications from Van der Feltz-Cornelis A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al Childhood sexual abuse predicts treatment outcome in conversion disorder/functional neurological...
  20. Andy

    Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder 2023 Van der Feltz-Cornelis, Moriaty and Strain

    Abstract There have been suggestions that Long COVID might be purely functional (meaning psychological) in origin. Labelling patients with neurological dysfunction in Long COVID as having functional neurological disorder (FND) in the absence of proper testing may be symptomatic of that line of...
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