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  1. Andy

    Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition, 2023, Garner et al

    Note the language. In my opinion, a professional, and more normal, way to have described it would have been as a hypothesis.
  2. Andy

    Preprint A Proposed Explainable Artificial Intelligence-Based Machine Learning Model for Discriminative Metabolites for ME/CFS, 2023, Yagin et al

    "ME/CFS Metabolomics Dataset The metabolomics data of CFS patients and healthy controls were utilized to perform the experiments in the study [2]." Reference [2] is Germain A, Barupal DK, Levine SM, Hanson MR. Comprehensive circulatory metabolomics in ME/CFS reveals disrupted metabolism of...
  3. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    "We’ve have over 18k DNA participants! Thank you to everyone who has taken part so far and for the great support in helping us spread the word! We are 75% of the way there and still need more so keep sharing! We are so thankful for the response after inviting more participants to provide DNA...
  4. Andy

    Reactivation of herpesvirus type-6 and IgA/IgM-mediated responses to activin-A underpin Long COVID, including affective symptoms and cfs 2023, Vojdani

    Sorry, meant to link to our thread on that paper, A rating scale for fibromyalgia and chronic fatigue syndrome (the FibroFatigue scale), 2002, Zachrisson et al
  5. Andy

    Reactivation of herpesvirus type-6 and IgA/IgM-mediated responses to activin-A underpin Long COVID, including affective symptoms and cfs 2023, Vojdani

    "Approximately three to four months after recovering from acute COVID-19, all participants in study 1 were interviewed by an experienced psychiatrist. The purpose of this interview was to collect information regarding the sociodemographic and clinical characteristics of the participants. The...
  6. Andy

    Review Management of Functional Somatic Syndromes and Bodily Distress 2018 Henningsen, Creed et al

    Functional somatic syndromes (FSS), like irritable bowel syndrome or fibromyalgia and other symptoms reflecting bodily distress, are common in practically all areas of medicine worldwide. Diagnostic and therapeutic approaches to these symptoms and syndromes vary substantially across and within...
  7. Andy

    Integrated Care for Patients with Somatic Symptom Disorder in Primary Care – A Qualitative Participatory Evaluation... 2023 Tönnies et al

    Full title: Integrated Care for Patients with Somatic Symptom Disorder in Primary Care – A Qualitative Participatory Evaluation of a Randomised Feasibility Trial Objective The VISION intervention is a manualized short-term treatment for people with somatic symptom disorder, integrated into...
  8. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 17th July Facebook: https://www.facebook.com/sci4me/posts/pfbid025mpUnY1NnZUEBMMa8a9udXRynF23SB6L2oLT1E7RTMeWnAwgeksnWqFbQrGy1pMYl Mastodon: https://med-mastodon.com/@s4me/110768503224649034
  9. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 17th July Facebook: https://www.facebook.com/sci4me/posts/pfbid02DFGnqDdZxxEYX1TM7vqgfetCZmxgYfx8dPuTGSejL9SBWtyPXVN61mF6RVZJ7C3dl Mastodon: https://med-mastodon.com/@s4me/110762830524204534
  10. Andy

    The contested zone: interviews with GPs about their beliefs about treatment-resistant depression, 2023, Talbot et al

    Abstract for a poster presentation made at the British Journal of General Practice. Background Treatment-resistant depression (TRD) is when antidepressants do not work and affects 55% of British primary care users with depression. People with TRD should be referred to secondary care but there...
  11. Andy

    The experiences of remote consulting for people with ... (CFS/ME) and fibromyalgia in primary care 2023 Leach, Chew-Graham et al

    Abstract for an oral presentation made at the British Journal of General Practice. Background Restrictions due to the COVID-19 pandemic resulted in a sudden shift to a predominantly remote consulting model in primary care from March 2020. Little evidence exists examining the experience of...
  12. Andy

    Traumatic brain injury as a chronic disease: insights from the United States Traumatic Brain Injury Model Systems Research Program 2023 Dams-O'Connor

    Traumatic brain injury (TBI) is a global health priority, associated with substantial burden. Historically conceptualised as an injury event with finite recovery, TBI is now recognised as a chronic condition that can affect multiple domains of health and function, some of which might deteriorate...
  13. Andy

    Rates of Prolonged Grief Disorder: Considering relationship to the person who died and cause of death, 2023, Thieleman et al

    Posting just because I can't believe that they created a disorder out of grief.
  14. Andy

    Rates of Prolonged Grief Disorder: Considering relationship to the person who died and cause of death, 2023, Thieleman et al

    Background Prolonged Grief Disorder (PGD) was recently included as a disorder in DSM-5-TR despite some controversy. The rate of PGD is known to vary according to a number of factors and little is known about how bereaved individuals view the diagnosis. Methods This cross-sectional study...
  15. Andy

    Protocol (United Kingdom) Profiling the response to exercise in Long COVID patients to inform novel rehabilitation guidelines, recruiting, Faghy and Bewick

    Dr Mark Faghy on Twitter, "A thread for our new research project looking at Post Exertional Malaise/Post-Exertional Symptom Exacerbation in #LongCovid" https://threadreaderapp.com/thread/1680882026717536256.html
  16. Andy

    Protocol (United Kingdom) Profiling the response to exercise in Long COVID patients to inform novel rehabilitation guidelines, recruiting, Faghy and Bewick

    "Why have we chosen to study physical exertion? We know that PEM and PESE are brought about by mental and emotional exertion as well as physical exertion and this is something that we also need to increase our understanding of. To better understand PEM and PESE we first need to look at the...
  17. Andy

    Protocol (United Kingdom) Profiling the response to exercise in Long COVID patients to inform novel rehabilitation guidelines, recruiting, Faghy and Bewick

    "The value of clinical cardiopulmonary exercise testing (CPET) within healthcare settings has been established in the last decade. CPET methods remain highly relevant in the COVID-19 endemic phase and should be used to assess those recovering from COVID-19 infection. This diagnostic tool could...
  18. Andy

    Research links chronic constipation to cognitive decline

    Can't know if these are what they are referring to but there are these studies (neither of which we have a thread for) "patients presented increased proportions of Lactonifactor and Alistipes, as well as a decrease in several Firmicutes populations."...
  19. Andy

    World ME Alliance, was previously IAFME: International Alliance for ME

    2022/23 annual report available, https://worldmealliance.org/2023/07/celebrating-growth-collaboration-and-impact/
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