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  1. Andy

    Germany: 2022 Society for General and Family Medicine (DEGAM) Fatigue Guideline

    Fatigue - S3 guideline update, 2023, Kornder et al Summary background Fatigue is a common symptom in the family doctor's office, where there is often diagnostic uncertainty. Sufferers use descriptions that include emotional, cognitive, physical, or behavioral aspects. A variety of biological...
  2. Andy

    Hypothesis An Exercise Immune Fitness test to unravel mechanisms of post-acute sequelae of COVID-19, 2023, Deng

    "Persons will be scheduled 3-9 months post-COVID-19 diagnosis for a clinically indicated cardiopulmonary exercise test and will have ACD, CPT, and PAX-gene tubes drawn 30 minutes before, at peak, and 1 hour after CPET testing. We expect that out of 200 COVID-19 patients, 50 patients will have...
  3. Andy

    Hypothesis An Exercise Immune Fitness test to unravel mechanisms of post-acute sequelae of COVID-19, 2023, Deng

    The Post-Acute Sequelae of COVID-19 (PASC) Syndrome is a debilitating syndrome with onset three months post COVID-19 infection, marked by the presence of fatigue, headache, cognitive dysfunction, post-exertional malaise, orthostatic intolerance, and dyspnea that is clinically relevant and is at...
  4. Andy

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Sent this morning to Cochrane Press Office and IAG email addresses, "Hello, As it has now been two months since your previous response, and 39 months since the update was first announced, please can you advise me of any progress that you have made in that time. Thanks in anticipation. Andy"...
  5. Andy

    USA: News from Solve ME

    Solve Spearheads Call for New NIH Office for Infection-Associated Chronic Illness Research (IACIR) "This year, Solve is beginning one of our most ambitious advocacy projects to date — one which could alter the research landscape for ME/CFS, Long Covid, and other infection-associated chronic...
  6. Andy

    Petition: UK Funding for ME & Long Covid research into treatment

    Sean O'Neill, from The Times, on Twitter promoting this petition,
  7. Andy

    News from Australia

    From Natalia Hodgins on Twitter. "A heartfelt thank you to @SenatorJordon and @MariaVamvakinou for re-establishing the Parliamentary Friends of ME/CFS in Australia. A launch event will be held on 13 June, 11am-12pm AEST at Parliament House. All are welcome to attend via live-stream...
  8. Andy

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    The sub-typing is simply by onset, "Five different ME/CFS onset types were examined in the self-reported data: those with ME/CFS onset (i) after glandular fever (infectious mononucleosis); (ii) after COVID-19 infection; (iii) after other infections; (iv) without an identified infectious onset...
  9. Andy

    New-onset functional tics during the COVID-19 pandemic: clinical characteristics of 105 cases from a single centre 2023 Cavanna et al

    Background and purpose The COVID-19 pandemic has been associated amongst others with a sharp increase in adolescents and young adults presenting acutely with functional tics. Initial reports have suggested clinically relevant differences between functional tics and neurodevelopmental tics seen...
  10. Andy

    Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study.. 2023 David-Wilathgamuwa

    Full title: Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study of Australian Children Objectives To examine the prevalence of socioemotional and behavioural difficulties (SEBDs) in children with chronic physical...
  11. Andy

    Effect of transcutaneous electrical acupoint stimulation on learning and memory ability of chronic fatigue syndrome rats and its mechanisms 2023 Zhong

    [Rats were tortured to simulate 'CFS', then were given transcutaneous electrical acupoint stimulation, improved "learning and memory ability of CFS rats" was then claimed] Objective: To observe the effect of transcutaneous electrical acupoint stimulation (TEAS) on the histomorphological...
  12. Andy

    Blue Sunday: The Tea Party for M.E. 2023

    From Anna, the organiser, on Twitter. "Morning! A fundraising update for you. Still 4 charities to contact and add to the total. Speechless actually. £23,900!"
  13. Andy

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Why would the forum need to be involved? Obviously we have a platform where discussions can take place but I don't understand why we would need to extend an invitation.
  14. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    BBC News: Record numbers not working due to ill health "The number of people not working in the UK due to long-term sickness has risen to a new record, official figures show. The Office for National Statistics said more than two and a half million were not working because of health problems...
  15. Andy

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Continue funding ME/CFS research "Berlin – Research into the disease myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) continues to be the focus of science and politics. On the one hand, it is important to track down the causes, not least in order to be able to develop effective...
  16. Andy

    Review Mitochondrial and metabolic features of salugenesis and the healing cycle, 2023, Naviaux

    Highlights Pathogenesis and salugenesis are the first and second stages of the two-stage problem of disease production and health recovery. Salugenesis, the healing cycle, the integrated stress response (ISR), and the cell danger response (CDR) each describe different aspects of the same...
  17. Andy

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    No, as to date I don't believe it has ever been published.
  18. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Well, taking a positive view, perhaps it indicates a willingness to adopt the same criteria as we have used; I personally wouldn't call that collaboration, in the sense of directly working together, but it might be a language difference thing where information sharing is seen as being...
  19. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Cross-posted with Arvo's post immediately above. In my opinion, way too much is being made of the word collaboration in this situation. As we (DecodeME) are a project that is as open as possible, we are, and always have been, willing to share with whoever is interested: our selection criteria...
  20. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I'm sorry, I don't follow why I would want this document? Mod note: this response was prompted by a suggestion that S4ME as a whole responds to the issue (since deleted due to some confusion about how to contact S4ME administration) If you would like the social media accounts to help in this...
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