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Presentations from the Symposium available here, http://mecfs-research.org/mecfs-symposium2023/ Presentations from the Conference available here, http://mecfs-research.org/mecfs-conference2023/

Well, if they knew about 'our' PACE trial, and they agreed with our opinion of it, then yes, it would be silly of them to re-use it, but I would guess they are probably blissfully unaware of it.

The ME Association on Twitter. "Support the ME Association's #CountMEin campaign - please keep sharing, thank you! A major campaign to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of #MECFS or #LongCovid "

Objective A consideration of chronic illness according to illness labels that are medically understood as opposed to being outside of medical understanding may reveal unique differences in how individuals understand their illness and how such lay understandings relate to health-related quality...

Full title: The association between the number of symptoms and the severity of Post-COVID-Fatigue after SARS-CoV-2 infection treated in an outpatient setting Background Post-COVID-Fatigue (PCF) is one of the most reported symptoms following SARS-CoV-2 infection. Currently, research on...

From ME/CVS Vereniging, "Update 5/23/23: ZonMw has now informed us that our WOO [freedom of information] request is extensive and that more time is needed. ZonMw will use an external law firm to consult with the ME/CFS Association about prioritizing the handling of our request. To be...

Merged NIH Director's blog: Brain signatures for chronic pain identified in a small group of individuals "For the first time, researchers have recorded pain-related data from inside the brain of individuals with chronic pain disorders caused by stroke or amputation (phantom limb pain). A long...

Full title: Parasympathetic autonomic dysfunction is more often evidenced than sympathetic autonomic dysfunction in fluctuating and polymorphic symptoms of "long-COVID" patients Abstract Several disabling symptoms potentially related to dysautonomia have been reported in “long-COVID” patients...

Chronic viral hepatitis is a systemic disease characterized by a wide range of extrahepatic manifestations, such as cognitive impairment, chronic fatigue, sleep disorders, depression, anxiety and a decrease in quality of life. This article presents a summary of the main theories and hypotheses...

Nope, not that I could find. However, "All patients fulfilled the CFS criteria and 261 had typical ME (72%), 101 (28%) had atypical ME."; I understand that to mean that 261 (72%) met the ICC and that the balance has atypical ME, which is just those who only met Fukuda, which they describe as...

The incidence of type 1 diabetes in children increased during the COVID-19 pandemic,1-4 but studies have not discriminated between children with and without infection. We analyzed a large population-based, individual-patient data set that included diagnoses of COVID-19 to determine whether there...

"During the first visit, we determined by history taking of the treating physician whether patients satisfied the criteria for CFS (Fukuda et al., 1994) and ME (Carruthers et al., 2011), taking the exclusion criteria into account. " "All patients fulfilled the CFS criteria and 261 had typical...

Trial By Error: Questions About the Prevalence of Functional Neurological Disorder and the Research on Hoover’s Sign for Functional Leg Weakness "I have great sympathy for patients diagnosed with functional neurological disorder (FND). Their symptoms can be seriously disabling and their plight...

"We are asking people to complete a short survey about their health experiences and the support they have received from the NHS and social care services. This anonymous survey will help us to: Improve NHS and social care services Raise much-needed awareness Better understand how people's...

Highlights Clinical manifestations of the long COVID syndrome include cognitive impairments, named “brain fog”. Previous literature suggest possible mechanisms that might result in altered cortical excitability. This study confirms impaired glutamate and GABAb regulatory pathways in long...

Background Dyspnea and fatigue are characteristics of long SARS-CoV-2 (COVID)-19. Cardiopulmonary exercise testing (CPET) can be used to better evaluate such patients. Research question How significantly and by what mechanisms is exercise capacity impaired in patients with long COVID who are...

Published papers thread for w/c 15th May Facebook: https://www.facebook.com/sci4me/posts/pfbid0yw1kn762TbigbCjdus6PyTBw2nJFGdJq656exLvBTSJVcgcU9dCXJx8re7Q1jG1gl Mastodon: https://med-mastodon.com/@s4me/110411378487276799

Section snippets Case Report A 59-year-old woman, Mrs. A, was referred for an outpatient telemedicine psychotherapy consultation in the department of neurology at a large academic medical center. Five years earlier, she had begun experiencing neurological symptoms including gait and balance...

Now published Increased Levels of Inflammatory and Endothelial Biomarkers in Blood of Long COVID Patients Point to Thrombotic Endothelialitis The prevailing hypotheses for the persistent symptoms of Long COVID have been narrowed down to immune dysregulation and autoantibodies, widespread organ...

News in Brief posts for w/c 15th May Facebook: https://www.facebook.com/sci4me/posts/pfbid02Fnzv69LPCoT44HgumvDSxFf1As9vqMNDbPz5F24aeBYXv7GmcAZDAJvoHc5bsrZxl Mastodon: https://med-mastodon.com/@s4me/110405693381471634