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Thanks, my question was more coming from the point that I've seen people taking these figures as indicating that only approx 21k of the entire English ME/CFS patient population have a diagnosis at all, and I was trying to figure out why that would, or could, be an inaccurate interpretation.

The headline, "Only one in ten (21,927) of the estimated 250,000 patients are currently recorded as having ME/CFS in the medical system.", is based on "The number of patients on record with a diagnosis of ME/CFS and receiving care was indicated to be 21,927 people in total. This is likely...

Abstract Chronic fatigue is a frequent complaint, expressed at all levels of the healthcare system. It is perceived as disabling in a high proportion of cases, and internists are frequently called upon to find “the” cause. The etiological diagnostic approach of an unexplained state of fatigue...

I assume you are thinking about what is discussed in this thread, FOI requests (to NICE, and NHSE&I): Materials pertinent to the decision by NICE to delay publication of the final guideline

Well, my comment is I'm confused about what you are referring to. To my knowledge, the forum has never made any Freedom of Information requests, and most likely doesn't have the capacity to do so unless somebody steps forward to coordinate and progress any such effort.

Published papers thread for w/c 22nd May Facebook: https://www.facebook.com/sci4me/posts/pfbid0RAeoWbheTL6XxJ2kJDdoqezBKdW2SwxqoXH24HgArHUrVeTcYCrZpm4e5gdqfd7jl Mastodon: https://med-mastodon.com/@s4me/110450881815138333

From the Times article "Only 28 per cent of NHS trusts and integrated care boards (ICBs), the bodies responsible for health and care services in a local area, have implemented the Nice guidelines published two years ago." "Only one in five people with ME have a personalised care and support...

What is available outside of the paywall "Thousands of patients with a debilitating condition are being failed by NHS hospitals ignoring treatment guidelines, a report has said. In 2021 the National Institute for Health and Care Excellence (Nice) produced guidance on how patients with myalgic...

News in Brief posts for w/c 22nd May Facebook: https://www.facebook.com/sci4me/posts/pfbid02DRj6Fk2ge4GU3bfHh5JzVa5jUMxDFnwhNTvcpg6Fg1xwTgZKv4wMnT84vuzeAAhGl Mastodon: https://med-mastodon.com/@s4me/110446141459248180

Full title: Influence of Chronic Fatigue Syndrome Codiagnosis on the Relationship between Perceived and Objective Psychoneuro-Immunoendocrine Disorders in Women with Fibromyalgia Abstract Although the predominant symptom in fibromyalgia (FM) is muscle pain, and fatigue in chronic fatigue...

Trial By Error: Psychologist Brian Hughes Discusses His New Book, “A Conceptual History of Psychology” "My friend and colleague Brian Hughes, a professor of psychology at the University of Galway in Ireland, recently published his latest book—“A Conceptual History of Psychology: The Mind...

Correction to: Anxiety in children with CFS/ME, 2023 Following a report of a publications review jointly commissioned by the Health Research Authority and the University of Bristol, the authors would like to correct the following element of the ethics statement provided in the original article...

Anxiety symptoms are commonly described in children with chronic fatigue syndrome or myalgic encephalopathy (CFS/ME) but to date there has been little information on the type of anxiety children experience or the relationship between anxiety and school attendance, disability or fatigue. The...

The references and author detail make it clear that the authors are clearly on the psych side of things. "Jack Purrington, Clinical Psychology Team, Chrysalis Associates, Bradford Grantham Sheffield and York, UK. Emails: jack.purrington@chrysalisassociates.org"

Objectives This service evaluation explored the experiences of families receiving care in a paediatric chronic fatigue service. The evaluation aimed to improve service provision across paediatric chronic fatigue services more widely. Methods Children and young people aged 7–18 years (n  =  25)...

In mice. Highlights Psychological stress leads to monocyte-mediated exacerbation of gut inflammation Chronic glucocorticoid signaling drives the effect of stress on IBD Stress induces inflammatory enteric glia that promote monocyte recruitment via CSF1 Stress provokes transcriptional...

Background Chronic pain is a common comorbidity in those with functional neurological disorder (FND), however the prevalence and characteristics of FND in those with chronic pain is unknown. Methods A retrospective electronic records review of consecutive new patients attending a chronic pain...

Background: Deep metabolomic, proteomic and immunologic phenotyping of patients suffering from an infection with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) have matched a wide diversity of clinical symptoms with potential biomarkers for coronavirus disease 2019 (COVID-19)...

Abstract In the previous study, whole-body cryotherapy (WBC)+static stretching (SS) has been shown to reduce the severity of some symptoms in Chronic Fatigue Syndrome (CFS) noted just after the therapy. Here we consider the effects of treatment and explore the sustainability of symptom...

Background: Recent years have seen a dramatic increase in new “tic” cases in teens and young adults. These individuals often present with fulminant onset of symptoms not commonly seen in Tourette syndrome (TS) and are often diagnosed with Functional Neurological Symptom Disorder (FND-tic)...