"Persistent Somatic Symptoms (PSS) are defined as pain, fatigue, and/or dizziness or a combination of these which last at least several weeks and for which no sufficient explanation can be found after proper medical examination [[1], [2], [3]]. PSS are very common, especially in primary care...
Full title: The cost-effectiveness of an indicated blended care intervention in primary care compared to usual care in patients with moderate persistent somatic symptoms
Highlights
This is the first cost-effectiveness study on treating patients with moderate PSS.
Overall, the intervention is...
Highlights
After COVID-19 infection, symptoms such as dyspnoea may persist.
In respiratory diseases, dyspnoea reduces health-related quality of life.
Physiotherapy and rehabilitation are both currently recommended in this context.
A 3-month course of exercise training rehabilitation (ETR)...
From Wikipedia,
"Eye movement desensitization and reprocessing (EMDR) is a form of psychotherapy devised by Francine Shapiro in the 1980s that was originally designed to alleviate the distress associated with traumatic memories such as post-traumatic stress disorder (PTSD). EMDR involves...
"Exclusion criteria
...
Predominant diagnosis of chronic fatigue syndrome (comorbid diagnosis is acceptable, as long as FND is the predominant difficulty)."
Abstract
Introduction
Functional neurological disorder (FND) refers to an involuntary loss of control over and/or aberrant perception of the body. Common presenting symptoms are functional (non-epileptic) seizures, and functional motor disorder, for example, walking difficulties, weakness or...
Protocol
See next post for the Trial Report
Full title: Randomised, controlled, open-label pragmatic trial evaluating changes in functional exercise capacity after primary care PUlmonary REhabilitation in patients with long COVID: protocol of the PuRe-COVID trial in Belgium
Introduction
Long...
TG on Twitter. If this succeeds then we might have a better route to complain about doctors who make false statements about ME/CFS on social media.
"The UK General Medical Council has adopted an antiquated position on doctors who spread false & misleading information on social media. This...
Recent update from Dianna Cowern (Physics Girl on YouTube)
"It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk. I want to be out in the world living a life. My body hurts. But my heart hurts more. I wish I had a...
"Three to four months after the onset of acute COVID-19, a senior psychiatrist assessed the following rating scales: (a) the 12-item Fibro-Fatigue (FF) scale to assess chronic fatigue and fibromyalgia symptoms"
"The mean HAMD, HAMA, and FF scores (23.6 ± 5.6; 25.4 ± 8.6; and 30.9 ± 10.1...
Thought this looked an interesting example of how charities and a national funding agency can collaborate on this sort of project.
"We want to produce the clinical and economic data that could help make the case for blood biomarker implementation in a healthcare setting in the UK.
Duration: Up...
Also available on the APPG website, https://appgme.co.uk/meetings/annual-general-meeting-2023/
and also available via AfME's website, which also has a template email for inviting MPs to the next meeting, https://www.actionforme.org.uk/news/invite-your-mp-to-the-next-appg-on-m.e.-meeting/
May News in Brief posted to Reddit.
Copy and paste link below
https://www.reddit.com/r/cfs/comments/13xcak2/the_news_in_brief_posts_for_may_2023_which_cover/
"Physician Binita Kane, a lung specialist in Manchester, England, and an Honorary Senior Lecturer at the University of Manchester’s School of Biological Sciences, has been outspoken on the subject of long Covid in children. Her passion about the issue has been fueled by her own daughter’s...
Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS
"Earlier this month, on World ME Awareness Day, I spoke at the Hope 4 ME & Fibro NI conference in Belfast. The event was hosted in the Stormont Parliament Buildings by Alliance Party MLA, Paula Bradshaw.
The title of...
Introduction: During a standard 70-degree head-up tilt test, 90% of adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) develop an abnormal reduction in cerebral blood flow (CBF). A 70-degree test might not be tolerated by young ME/CFS patients because of the high incidence...
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