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  1. Andy

    Cognitive Behavior Therapy, 2023, Chand et al

    Continuing Education Activity In the 1960s, Aaron Beck developed cognitive behavior therapy (CBT) or cognitive therapy. Since then, it has been extensively researched and found to be effective in a large number of outcome studies for psychiatric disorders including depression, anxiety disorders...
  2. Andy

    World ME Alliance, was previously IAFME: International Alliance for ME

    Neúnavní joins the World ME Alliance to represent the Czech Republic https://worldmealliance.org/2023/06/neunavni-joins-the-world-me-alliance-to-represent-the-czech-republic/ Also posted here, News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary
  3. Andy

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Neúnavní joins the World ME Alliance to represent the Czech Republic "We are thrilled to announce the newest member of the World ME Alliance: Neúnavní. This Czech charity is dedicated to supporting individuals living with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neunavní has been...
  4. Andy

    Cognitive impairment in long-COVID and its association with persistent dysregulation in inflammatory markers 2023 Damiano et al

    Objective: To analyze the potential impact of sociodemographic, clinical and biological factors on the long-term cognitive outcome of patients who survived moderate and severe forms of COVID-19. Methods: We assessed 710 adult participants (Mean age = 55 ± 14; 48.3% were female) 6 to 11 months...
  5. Andy

    Trial Report Outpatient treatment of Covid-19 and the development of Long Covid..., 2023, Bramante et al

    Now published Outpatient treatment of COVID-19 and incidence of post-COVID-19 condition over 10 months (COVID-OUT): a multicentre, randomised, quadruple-blind, parallel-group, phase 3 trial Background Post-COVID-19 condition (also known as long COVID) is an emerging chronic illness potentially...
  6. Andy

    The relevance of pacing strategies in managing symptoms of post-COVID-19 syndrome 2023, Ghali et al

    Of course pacing allows more IF capacity improves but that isn't what is claimed here. "Consequently, perceived energy levels will increase over time and fatigue levels decrease, allowing patients to progressively perform higher levels of physical and cognitive activities."
  7. Andy

    The relevance of pacing strategies in managing symptoms of post-COVID-19 syndrome 2023, Ghali et al

    The description of pacing starts alright but then veers off into graded activity territory. "They consist of adapting and adjusting the different patients’ activities in terms of physical, cognitive and emotional effort within the limits imposed by the illness [28]. Pacing is very similar to...
  8. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    They actually cover this point somewhat "This study enforces the recommendation for the use of a consistent set of outcome measures in studies in COVID-19. One such list of recommended variables is the International Consortium for Health Outcomes Measurement (ICHOM) set of patient-centred...
  9. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    From my quick scan of the references, this paper was the closest that the authors came to referencing anything remotely like ME/CFS, and it's the latest garbage from the COFFI crew, Jama - Prevalence and Characteristics with Post-COVID-19 Condition Among Non-hospitalized Adolescents... -...
  10. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    No mention at all of PEM/PESE or of ME/CFS in the paper that I could find. The bolded sentence seems strangely worded to me. "This study has implications for the targeting of limited resources to effectively address functional limitations from PCS. Of particular concern is the large proportion...
  11. Andy

    A natural experiment on the effect of herpes zoster vaccination on dementia, 2025, Eyting et al

    Does shingles vaccination cut dementia risk? Large study hints at a link "Vaccination against shingles might also prevent dementia, such as that caused by Alzheimer’s disease, according to a study of health records from around 300,000 people in Wales. The analysis found that getting the vaccine...
  12. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    To repeat what has been said already, for the most accurate results from any meta analysis then the inclusion criteria that the data is based on needs to be the same. DecodeME has used the IOM/NAM and CCC, and there is nothing there to confirm what criteria the Lifeline's cohort will use, so...
  13. Andy

    Preprint Altered Lipid, Energy Metabolism and Oxidative Stress Are Common Features in a Range of Chronic Conditions, 2023, Morten et al

    Review article. Authors: Karl Jonathan MORTEN University of Oxford Leah Davis University of Oxford Tiffany A. Lodge University of Oxford James Strong University of Oxford José Andrés Espejo-Oltra Catholic University of Valencia Saint Vincent Martyr Pawel Zalewski Medical University of...
  14. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Trial By Error: A Letter Regarding Inflated Prevalence Rates for Functional Neurological Disorder I have posted previously about how papers on functional neurological disorder (FND) have routinely mis-cited a seminal 2010 study in asserting that the diagnosis is the second-most-common...
  15. Andy

    Major Depressive Disorder and CFS Show Characteristic Heart Rate Variability Profiles Reflecting Autonomic Dysregulations, 2023

    "MDD and CFS were diagnosed using the criteria of the Diagnostic and Statistical Manual of Mental Disorders, 5th edition (DSM5) [8], and with the 1994 Center for Disease Control clinical criteria [11], respectively"
  16. Andy

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    "Dr Katrina Pears attended the 2-day research conference for the ME Association and reports on a selection of the presentations. The conference programme can be accessed here. It included 28 short presentations and a poster session with 25 posters (that included Dr Karl Morten speaking about his...
  17. Andy

    Cot Death Genetic Link: Kathleen Folbigg: Mother who served 20 years for killing her four babies pardoned

    From 2001, about another similar case. "Sally Clark was sent to prison two years ago, condemned to life inside for murdering her two babies because - among other evidence - there was only 'one chance in 73 million' of the babies, born a year apart, both dying of natural causes. But the...
  18. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    "Direction for future research The limitations of the current review provide important insights into directions for future research. It is recommended that future trials expand upon the current findings through examining other chronic health condition populations experiencing significant...
  19. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    Abstract Objective Fatigue is significantly more prevalent in the chronically ill compared to healthy individuals. Fatigue is one of the most reported and debilitating symptoms in individuals with chronic health conditions. Despite this, there is limited evidence examining the efficacy of...
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