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  1. MeSci

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    I have sent the following to my MP: "Dear Mr Mann, I must trouble you again and ask you to sign EDM 1247 which reads: "That this House recognises Myalgic Encephalomyelitis (ME) Awareness Week from 6 to 12 May 2018, which aims to aims to highlight the impact this invisible illness has on...
  2. MeSci

    Merryn Crofts - media and inquest

    That really brings home a few things. I do hope that her inquest shows something important.
  3. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Lords/2018-05-01/HL7468/ The Countess of Mar To ask Her Majesty's Government what are the recovery rates of patients with myalgic encephalomyelitis who have received treatment under the...
  4. MeSci

    Q&A with Prof Chris Ponting May 2018

    I don't know - it just appeared in my inbox via MEActionUK@yahoogroups.com.
  5. MeSci

    Q&A with Prof Chris Ponting May 2018

    Date: May 3, 2018 URL: https://www.actionforme.org.uk/uploads/images/2018/05/chris-ponting-interview-may-2018.pdf Q&A with Prof Chris Ponting --------------------------- Chair of Medical Bioinformatics, University of Edinburgh and Deputy Chair, UK CFS/M.E. Research Collaborative (CMRC), What...
  6. MeSci

    A graded exercise therapy circuit class for rheumatology pain patients (Warning - may raise blood pressure!)

    Source: Rheumatology Vol 57, Suppl 3 Date: April 25, 2018 URL: https://academic.oup.com/rheumatology/article/57/suppl_3/key075.505/4971407 The G.E.T. Going Group: A graded exercise therapy circuit class for rheumatology pain patients: outcomes of those completing the group, and survey of...
  7. MeSci

    David Tuller Interview - A Peace of the Action Program - Radio Adelaide (Apr 15, 2018)

    link here: https://www.s4me.info/threads/david-tuller-trial-by-error-two-interview-podcasts-and-conflict-of-interest.3615/#post-64305
  8. MeSci

    [POLL] Is ME primarily an environmental illness?

    I think that it's pretty evenly spread across the world, isn't it? So I don't think it's generally environmental, but maybe it can be in some cases.
  9. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: April 23, 2018 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-04-13/135844/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue Syndrome...
  10. MeSci

    David Tuller's new crowdfunding campaign (April 1, 2018)

    86% now - just 14% to go.
  11. MeSci

    David Tuller's new crowdfunding campaign (April 1, 2018)

    84% now! Only 16% to go.
  12. MeSci

    Assessments for benefit in UK - short piece on radio including ME patient

    I didn't follow this awfully well or remember very well, but you can listen from https://www.bbc.co.uk/programmes/b09zt3bw#play from 0204-0747 (I don't know if it's available outside the UK). It's about the 'failures' (they look like deliberate misrepresentations to me and to others) to assess...
  13. MeSci

    Scientists and Dr Tuller brief Australia’s Chief Medical Officer - by Sasha Nimo ME Australia

    Good grief - this about one of Australia’s National Health and Medical Research Council (NHMRC): "Professor Andrew Lloyd is an infectious diseases physician, and an epidemiology, virology and immunology researcher. Prof Lloyd developed the UNSW Fatigue Clinic which treats chronic fatigue...
  14. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    So are mine. This is from an entry of mine on Phoenix Rising from 2015: "I had to fight hard to get copies of my notes sent to me. I got a batch from the previous GP. They are so chaotic I'm perhaps not surprised that GPs from there seemed to have little idea what was going on with me...
  15. MeSci

    Mechanisms of chronic pain and fatigue [Trial in progress, April 2018]

    Well, I'm not terribly 'science savvy' since my funny turn 2 years ago, but I do have a Bachelors and a Masters, both in science! I certainly take a keen interest as far as my impaired brain will allow. Sorry, but felt I had to defend my degrees! :)
  16. MeSci

    Mechanisms of chronic pain and fatigue [Trial in progress, April 2018]

    I don't like the sound of "we will induce a mild state of inflammation using a routine clinical Typhoid vaccination" Don't ME patients experience inflammation all/most of the time anyway?
  17. MeSci

    Updates from the UK ME/CFS Biobank / CureME team

    This is the one mentioned in Merryn Croft's thread: https://www.s4me.info/threads/manchester-evening-news-bedbound-and-in-unimaginable-pain-watching-my-daughter-waste-away-and-die-from-me-was-torture.3291/page-3#post-63231
  18. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: April 18, 2018 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-04-13/135426/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Fibromyalgia ------------...
  19. MeSci

    Blog: So I got married, Gary Burgess

    All the best to both of you for a happy future together!
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