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'ME – also known as myalgic encephalomyelitis, chronic fatigue syndrome or ME/CFS – is defined by as a “long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems”.' I just wondered whether a lot of...

I think most people would like to know: "We dedicate this paper to the memory of Robert (Bob) Courtney and his struggle to find a cure for ME/CFS."

BBC Radio 4 Programme You and Yours today discussed Covid-19 with at least 2 mentions of ME/CFS. You can listen here: https://www.bbc.co.uk/programmes/m000l0rk

The last bit could apply to millions of people for many many years: "They're going to be penalising people who are unwell..."

Done.

Great article. Just noticed small error: under heading 'Rechristening ME' it says "myalgic encephalomyelitis—what is was called" instead of "what it was called".

I wonder whether this should go, or at least be copied, here? https://www.s4me.info/threads/uk-house-of-lords-house-of-commons-questions.707/page-20

I've done it too. Not sure how complete, as I was flagging towards the end and may have missed some things out from the general statement bits.

Coronavirus: They avoided hospital but they still aren't getting better By Zoe Kleinman https://www.bbc.co.uk/news/health-53269391 Extreme fatigue, nausea, chest tightness, severe headaches, "brain fog" and limb pains are among the recurring symptoms described by some sufferers of Covid-19...

Moderators - please move this if it's in the wrong thread: "Coronavirus: NHS England launches tool to aid long-term recovery NHS England is launching a new service for people with ongoing health problems after having coronavirus. The government says "tens of thousands" of people have...

Merged thread BBC article on severe coronavirus does not mention possible M.E. This article posted today cites "an infectious diseases doctor at the Royal Free Hospital" with serious after-effects of coronavirus which bear resemblance to M.E., but does not mention the possibility that she may...

Merged thread Radio progs on Covid tonight (2nd July 2020) There are 2 BBC World Service programmes on Covid tonight, one at 22.00 and one at 22.30, but you can listen to them now. The first one looks at the origin, bringing up the possibility that it escaped from a laboratory...

Merged thread Radio progs on Covid tonight (2nd July 2020) There are 2 BBC World Service programmes on Covid tonight, one at 22.00 and one at 22.30, but you can listen to them now. The first one looks at the origin, bringing up the possibility that it escaped from a laboratory...

I'm just reading her 'Losing a beloved career' article, and she says that progress in research was largely thwarted "for five years" by the dreaded PACE study. It was a lot longer than that, even in the US, wasn't it?

"You must NOT have a medical condition that affects memory or attention" Yet you must have ME? :confused:

Adding an 's' to make searching easier: toes.

My toe, which had apparent gout in February for a month (never had before) is still slightly red.

I have sometimes left things on a washing line for over a year, after soaking in vinegar or bicarbonate, sometimes both in sequence. They have often lost their colour, and still smelt. I have sometimes had to give up. But they are not new items but things bought from charity shops.

I've already signed up with my new email, and don't know if I will regain access to my old address. But hopefully I'll read of any updates on this site!

I've changed my email address since the first sign-up - hope that's OK? I don't currently have access to the original one.