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  1. MeSci

    'The real me shining through M.E.': Visualizing masculinity and identity threat in men with ME/CFS, Lucina Wilde et al., 2019

    Source: Psychology of Men & Masculinity Preprint Date: April 30, 2019 URL: https://www.dora.dmu.ac.uk/handle/2086/17973 'The real me shining through M.E.': Visualizing masculinity and identity threat in men with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome using photovoice and IPA...
  2. MeSci

    Aptinyx stock soars on positive Phase 2 results for its fibromyalgia treatment, June 10, 2019

    Source: Proactive Investors Date: June 10, 2019 Author: Andrew Kessel <andrew.kessel@proactiveinvestors.com> URL: https://www.proactiveinvestors.com/companies/news/221797/aptinyx-stock-soars-on-positive-phase-2-results-for-its-fibromyalgia-treatment-221797.html Aptinyx stock soars on...
  3. MeSci

    Australia: News from Emerge Australia

    "We know it affects about 80 per cent of women compared to 20 per cent of men," Nicholl said. Not very well put. Sounds like 80% of women can expect to be infected!
  4. MeSci

    Forskning.no: Cancer medicine didn't work for ME

    Source Science Nordic Date: June 10, 2019 Author: Ingrid Nuse URL: http://sciencenordic.com/cancer-drug-doesn%E2%80%99t-work-chronic-fatigue Cancer drug doesn't work for chronic fatigue -------------------------------------------- Cancer drug rituximab has no effect on chronic fatigue...
  5. MeSci

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...
  6. MeSci

    Patients with fibromyalgia and chronic fatigue syndrome show increased hsCRP compared to healthy controls, 2019, Groven et al

    Just wondering - could our multitude of 'normal' results be related to low blood volume?
  7. MeSci

    Do all ME / CFS sufferers have low stamina?

    Just remembered - also couldn't swim more than a width or a length at secondary school - when I was still 'fit' and over a decade before getting ME - without having to stop. I tried everything, but nothing worked - varying strokes, concentrating on breathing, etc.
  8. MeSci

    Do all ME / CFS sufferers have low stamina?

    I used to be able to run fast, but often only for short distances (e.g. at school, and I didn't get ME until I was 42). I'm not sure whether the ME leg fatigue was obvious straight away; I think it was more gradual in development. I remember being puzzled by the extreme fatigue in my leg...
  9. MeSci

    Patients with fibromyalgia and chronic fatigue syndrome show increased hsCRP compared to healthy controls, 2019, Groven et al

    I can only find one result for myself, from 2016, and CRP was normal for me too - less than 1. I had been ill for 21 years.
  10. MeSci

    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    Date: June 7, 2019 Author: Tasneem Nashrulla URL: https://www.buzzfeednews.com/article/tasneemnashrulla/stanford-professor-fired-sexual-misconduct A Stanford professor fired over sexual misconduct allegations cited his 'Hispanic Heritage'...
  11. MeSci

    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    Source: Stanford Daily Date: June 6, 2019 Author: Julia Ingram & Claire Wang URL: https://www.stanforddaily.com/2019/06/06/medicine-professor-fired-for-sexual-misconduct-apologizes-cites-cultural-differences-for-conduct/ Medicine professor fired for sexual misconduct apologizes, cites cultural...
  12. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Lords Date: June 5, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Lords/2019-05-21/HL15894/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Medical Treatments: Children...
  13. MeSci

    Investigating the role of TGF-beta and fatigue in Chronic Fatigue Syndrome, Dibnah et al., 2019

    I thought I'd seen this on this site but can't find it. Source: Annals of the Rheumatic Diseases Vol 78, Suppl #2 Date: June 2019 URL: https://ard.bmj.com/content/78/Suppl_2/1495.2.abstract {Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12-15 June 2019] Investigating the...
  14. MeSci

    Which paper said CBT/GET should encourage participants to no longer see themselves as CFS patients

    You should be able to open 'Thread Tools' near the top, and choose 'Edit Title'.
  15. MeSci

    Which paper said CBT/GET should encourage participants to no longer see themselves as CFS patients

    I think you mean 'no longer' as in 'not any more'? Ditto in the title?
  16. MeSci

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    This is a very short video, but there's more text at the second link. I note that there is some more on Mike Musker elsewhere here (this site). Station: 9 News Date: May 30, 2019 WebTV...
  17. MeSci

    #MEAction Scotland News

    Here is the Agenda (the ME stuff is PE1690): https://www.parliament.scot/S5_PublicPetitionsCommittee/Meeting%20Papers/NewPPCPublicPapers30May19.pdf
  18. MeSci

    'Plague of Corruption - Restoring Faith in the Promise of Science' - (p)review of book by Mikovits & Heckenlively

    Source: Skyhorse Publishing Datd: November 5, 2019 URL: https://www.skyhorsepublishing.com/9781510752245/plague-of-corruption/ Ref: https://www.amazon.com/s?k=9781510752245 Interview...
  19. MeSci

    Hidden disability: The young film-maker shining a light on hidden illness (EDS)

    With her blonde hair, youthful complexion and brown eyes, Ashleigh Harley looks every inch the model, social media influencer and budding writer and film-maker. But, for Ashleigh, that's a problem she is addressing in a new documentary. Ashleigh is one of millions of people who live with a...
  20. MeSci

    Efficacy of supplements

    I think that the reason for the inconclusive findings is that different people with M.E./CFS benefit from different things, including different supplements, and that needs also change over time, as I have found.
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