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  1. MeSci

    Fragrance sensitivity

    I studied this at length some years ago, being one of the many perfume-sensitives, and wrote this blog: https://freshairfiend.wordpress.com/ There are an awful lot of different chemicals in even-individual perfumes.
  2. MeSci

    How Should We Select Patients for Blood Pressure–Lowering Treatment? NEJM article

    Here's the second review article on the issue: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(19)31665-4/fulltext and here is the first one referred to: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(19)31359-5/fulltext
  3. MeSci

    How Should We Select Patients for Blood Pressure–Lowering Treatment? NEJM article

    This is very interesting, as I developed unexplained high blood pressure years ago (when I had ME) and the first treatment - an ACE inhibitor - made me so ill I ended up in hospital with severe hyponatraemia (low blood sodium). It was almost low enough to kill me. Maybe I don't need to take...
  4. MeSci

    BBC programme You and Yours: Are you dependent on prescribed painkillers?

    "Today we're asking - are you dependent on prescribed painkillers? Public Health England has done its first big review of addiction and dependence on pain killers, anti depressants and drugs such as sleeping tablets and anxiety medication. One in four adults had been prescribed at least one of...
  5. MeSci

    Tinnitus treatment and management

    BBC Radio programme on tinnitus I haven't listened to this yet so don't know how relevant it is to ME. Hearing me The Documentary (This programme contains audio effects that may cause discomfort to people living with hearing conditions. There is a modified version of this programme, with...
  6. MeSci

    Burping

    I use burping to decide if I've had enough sodium. If I burp in 3 minutes or less after taking some sodium bicarbonate, I assume that I have. If not, I keep taking more until I burp in 3 minutes or less. I don't know how reliable it is, but it seems to stop me getting hyponatraemia (low blood...
  7. MeSci

    Pain & CBD (Cannabidiol)?

    There was a TV programme last week about CBD oil: https://www.bbc.co.uk/iplayer/episode/m0007zly/horizon-2019-6-cannabis-miracle-medicine-or-dangerous-drug I think it found that the oil was rather weak.
  8. MeSci

    Pain & CBD (Cannabidiol)?

    I've stopped taking it, at least for now. I don't get the feeling that it's helping. I'm getting very bloated (IBS) but don't know for sure if it's due to the cannabinoids. I have some of what I think is the proper stuff, and that is definitely working in that it makes me stoned and seems to...
  9. MeSci

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    I note that they refer to 'chronic pain/fatigue', not chronic fatigue syndrome. Looks like another word is required for pacing that involves increasing activity, as opposed to the kind that is used properly in ME/CFS, which responds to fatigue by reducing/stopping activity, or which is...
  10. MeSci

    BBC Radio 4 More or Less - Mice in studies

    I use nuts and seeds. Chopped-up nuts if the mouse/vole is a small/young one. Humane traps, of course.
  11. MeSci

    BBC Radio 4 More or Less - Mice in studies

    That gave me a turn - I don't recall my two cats ever reacting adversely to fish, and a quick search suggests that most cats are OK with it: https://www.pets4homes.co.uk/pet-advice/is-feeding-fish-to-your-cat-a-good-idea.html and actually some cats do catch fish - one of mine did once (from a...
  12. MeSci

    BBC Radio 4 More or Less - Mice in studies

    I think everyone who posts links to studies in mice should listen to this. I keep telling them, but it doesn't seem to sink in. These studies are meaningless. Please save your precious energy for potentially useful studies.
  13. MeSci

    FDA Clears Marketing for "Modified Two-Tiered" Lyme Disease Tests

    My brain is not working properly at the moment, so I'm not sure if this is directly connected or not: https://www.cdc.gov/mmwr/volumes/68/wr/mm6832a4.htm Paul Mead, MD1; Jeannine Petersen, PhD1; Alison Hinckley, PhD1 Summary What is already known about this topic? Serologic testing is the...
  14. MeSci

    New guideline provides recommendations for testing adults with suspected Functional Diarrhea or Diarrhea-Predominant Irritable Bowel Syndrome (USA)

    https://www.jwatch.org/na49679/2019/08/09/testing-functional-diarrhea-and-diarrhea-predominant?ijkey=6rMYefjWM Testing for Functional Diarrhea and Diarrhea-Predominant Irritable Bowel Syndrome Charles J. Kahi, MD, MS reviewing Smalley W et al. Gastroenterology 2019 Jul 11 A new guideline...
  15. MeSci

    Eye movement deficits in ME/CFS and sleep deprivation

    Just checked, and this is discussed here: https://www.s4me.info/threads/restricted-spatial-windows-of-visibility-in-me.2006/
  16. MeSci

    Eye movement deficits in ME/CFS and sleep deprivation

    This shows a couple of figures from the paper: https://www.semanticscholar.org/paper/Characterising-eye-movement-dysfunction-in-myalgic-Badham-Hutchinson/b68db4bf0f2837767ea3f9fd4435e9f12e8faf87 and this gives a bit more info: https://www2.le.ac.uk/departments/npb/people/ch190/CFS_ME
  17. MeSci

    Eye movement deficits in ME/CFS and sleep deprivation

    I tried to find the full text of the 2013 study, but got this at least: http://www.meresearch.org.uk/our-research/completed-studies/eye-movement-dysfunction/ which showed that it was a small study - 20 people per group.
  18. MeSci

    UK: Capita seeks to reverse 'reputational damage' after death of (agoraphobia & fibro) claimant (from brain haemorrhage)

    Have you read the article? For example: "The 33-year-old, from Market Drayton, in Shropshire, suffered from agoraphobia and fibromyalgia, which left her body in constant pain. The Capita employee found Ms Smith did not score a single point in the test - and the DWP stopped her benefit. In...
  19. MeSci

    UK: Capita seeks to reverse 'reputational damage' after death of (agoraphobia & fibro) claimant (from brain haemorrhage)

    Capita seeks to reverse 'reputational damage' after death of claimant By Michael Buchanan Social affairs correspondent, BBC News Benefit-assessment company Capita is going to court to try to reverse the "reputational damage" it says it suffered after a claimant died. Victoria Smith died...
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