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I definitely sleep better in a cool room with the windows open. The only time I have the windows shut at night is in the winter when it is close to 0° C or colder. When I was younger the heat didn't bother me so much at night, but now that I am a woman of a certain age, I can't stand being hot...

My ME/CFS has always been mild/moderate since Day One, 28 years ago. I have push-crashed for the past 28 years, yet it hasn't made my ME any worse. I've tried the resting and pacing at the advice of my doctor in the first year, however, all that accomplished was that it made my brain fog that...

For me, the answer is Yes. When I was first diagnosed 28 years ago, my doctor wanted me to take it easy and nap for at least two hours every afternoon. I could watch TV if I couldn't sleep, but there was no reading books or moving around. After four months she told me to stop because I was...

One of the hallmarks of ME/CFS is that no matter how well we sleep, we don't wake up in the morning feeling refreshed and full of energy to face the new day. We aren't tired - we are "exhausted". Something that no amount of sleep will fix. Doing a 'sleep hygiene' trial seems to me to be a...

While that is true, I'd rather see the occasional positive media coverage that we get here, rather than the obsessive 'blame the patient' media coverage that the UK is subjected to.

I agree with this statement. I had an Internist carpet-bomb me with blood tests and a CT scan. They found seven things wrong with me, and since then I've spent the past almost seven months going to specialists and testing. I still have more tests to go at the end of this month. Never again.

@arewenearlythereyet If this happens again, you might want to go in and have a talk with your doctor. To write a "massive piece of work, analysis and recommendations" and have a discussion with a work colleague about it, and then having absolutely no recall later on even after being shown the...

I paid for it. Actually, the kit was free as I did it at the time of one of their promotions, however, because I don't live in the US I had to pay for shipping. I don't think that uBiome require any of their tests to be ordered by a physician.

I had testing done through uBiome and it didn't require that the test be ordered by a physician.

There was something in the news recently about gluten sensitivity. They are wondering if possibly it is actually a histamine issue, rather than a gluten problem. I can't remember now where I saw this and can't find it on Google.

I was prescribed Ritalin many years ago and it made me absolutely hyper. I was only getting a couple of hours sleep a night and I was bouncing off the walls while I was on it. Never again.

I had the bone crushing fatigue for about a year. That was when I started using compounded progesterone cream.

I noticed that Ron Davis refers to ME/CFS as a disease.

I was going to say the same thing. I'm not deconditioned, yet I still have ME/CFS.

The reason I questioned it is some women think of meno as just being the years leading up to their last period and then meno is over. They don't realize that once you hit meno, it is permanent.

My peri started when I was 50 and then meno was at age 52. However, I didn't start having hot flashes until five months later.

@Kalliope When you say 'menopause' are you specifically talking about the time when a woman no longer has any periods, or are you referring to 'perimenopause', the period of time leading up to menopause? Menopause is the stretch of time from your very last period until you die.

I didn't notice any difference to my ME once I settled into meno. There is no 'usual' time for entering meno. The average age is 52, however, for lots of women it can be in their 40s. I know some women who are almost 60 and are still waiting.

Didn't Ron Davis say that his goal was to have every doctor have a nanoneedle in their office so that they could do testing right away?

I think this is a ways off yet. It's too soon to be getting excited about it.