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  1. TigerLilea

    Very sore and swollen ankle?

    Antibiotics can cause permanent damage.
  2. TigerLilea

    Microbiome testing reports discussion

    Gut bacteria has many more sources than food alone. You take in bacteria through breathing, your skin, and through your mouth. Gardening is a great way to get good bacteria. And then you have antibiotics that are notorious for wiping out good bacteria. In some cases there will be enough left for...
  3. TigerLilea

    Microbiome testing reports discussion

    Not necessarily. It's possible that a particular bacteria(s) got completely wiped out or a bad bacteria became over populated that has nothing to do with the food you eat.
  4. TigerLilea

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    It takes me an hour or two in the morning to get going. Then I'm good until around 3 pm and then I start running out of steam for the day.
  5. TigerLilea

    What is the course of your ME/CFS?

    I was thinking about this after I voted last night and I wonder, too, how much my aging is a factor in how I feel these days. Menopause for me was definitely life changing so it's hard to say how much of my fatigue today is ME related and how much is just a normal part of aging.
  6. TigerLilea

    What is the course of your ME/CFS?

    I voted 'relapsing-remitting' but I don't know how much of that is related to my allergies and sinus issues. But then again there is a good chance that they are related to my ME anyways.
  7. TigerLilea

    ScienMag: Usual antidepressants may not work in patients with chronic illness

    Amitriptyline is one of those antidepressants. I know three people who are using it for pain and to help with their sleep.
  8. TigerLilea

    David Tuller seeks anyone involved in the 1955 Royal Free Hospital ME outbreak

    A family across the street from me when I was growing up had mono and the two eldest girls were off of school for six months.
  9. TigerLilea

    David Tuller seeks anyone involved in the 1955 Royal Free Hospital ME outbreak

    That was the advice that my doctor gave me and after four months my ME was much worse. :(
  10. TigerLilea

    Is a CPET safe for PWME?

    I read that an ME patient needs total rest for two weeks before the CPET testing in order to get accurate results. Otherwise the second day's results wouldn't look much different from the first day's results.
  11. TigerLilea

    Is a CPET safe for PWME?

    It all depends on the person and how severe their ME is. I don't think that I would have a problem doing it, but it really depends on how physically active you are. For someone pretty much bedridden I would expect them to have a severe reaction to the testing, but for someone like me who can do...
  12. TigerLilea

    ScienMag: 'Reprogramming Gut Bacteria As “Living Therapeutics”'

    We could wait forever though for that. I've waited 27 years already.
  13. TigerLilea

    ScienMag: 'Reprogramming Gut Bacteria As “Living Therapeutics”'

    I wondered the same thing. Ken Lassesen (CFS Remission) recommends Mutaflor and Symbioflor-2 which are both E. coli Nissle probiotics.
  14. TigerLilea

    Annie Hoppers Dynamic Neural Retraining System

    My opinion is that this type of therapy falls under 'junk science'. You might want to consider finding a new doctor - one who takes ME seriously.
  15. TigerLilea

    IgG - what is it good for?

    That was one of the allergy tests that I had done also.
  16. TigerLilea

    IBS: Identification of an analgesic lipopeptide produced by the probiotic Escherichia coli strain Nissle 1917

    @adreno How long have you been using Mutaflor for and do you take breaks from it the way that Ken Lassesen suggests?
  17. TigerLilea

    Chronic Urinary Tract Infection or Interstitial Cystitis?

    When I was diagnosed with IC, it was after being put under in the OR and have a biopsy done of the inflammation to rule out bladder cancer. Only then was I given the diagnosis of IC. My urologist said that having ME put people at a higher risk of developing IC.
  18. TigerLilea

    IBS: Identification of an analgesic lipopeptide produced by the probiotic Escherichia coli strain Nissle 1917

    That's good to know. I think in the New Year I'll probably go ahead and order some and see how it goes. There is another one with e-coli that Ken also recommends but I believe it is only available from Europe so I don't know whether or not it will allowed it into Canada.
  19. TigerLilea

    IBS: Identification of an analgesic lipopeptide produced by the probiotic Escherichia coli strain Nissle 1917

    I'm still debating whether or not to try this probiotic. I've spent so much money over the years on products that haven't worked, but this is one of the probiotics that Ken Lassesen of CFS Remission recommends for ME. And it is available for sale here in Canada which is a bonus.
  20. TigerLilea

    IBS: Identification of an analgesic lipopeptide produced by the probiotic Escherichia coli strain Nissle 1917

    You can purchase Mutaflor in Canada, Germany, Finland, and Australia.
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