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Wherever there is an opportunity to try to exert influence…..

Sadly there’s a few of these studies based on tired animals. :banghead:

Szia fellow people with ME in Hungary. I have what’s called gradual onset ME and had been working 30 years when I finally got ME diagnosis and was not able to keep working.. I enjoy being in contact with people with ME from my country and around the world. Individually advocacy actions we can...

@PhysiosforME another who would benefit from some education

Interesting because I’ve seen quite a few people with ME talk about internal tremors and chest pain pre pandemic. If someone already has moderate/severe ME before catching covid possibly any new symptoms are easier to attribute to covid. But if your ME is milder end of the spectrum you are...

I wonder if there’s any likelihood of people with a good understanding of ME, the likes of Keith Geraghty or Leonard Jason or others pursuing this area?

There are email addresses linked within the paper

Presumably reference to DSHC is dept of Health and social care Reads like they didn’t actually discuss the Nice service spec which I consider a topic they need to keep on top of

Post activity fatigue also known as post exertional malaise……….

Target has been reached

Thanks all I’ll probably try to speak to a GP about it

I appear to have a combination of hayfever and PEM I’ve had pretty mild hayfever occasionally in the past. Nothing like this headache and cough though. I moved in last couple of years so I’ve got different trees in my garden. Now have a Maple which appears to have its flowers currently and...

Graded exposure therapy isn’t that a Freudian slip just letting out that they really do think it’s some kind of mental block like fear of flying or spiders that can be treated by gradual exposure.

Done :thumbup:

Cigarette smoke, I had no windows open and no neighbours around having a cig in the garden also toast

That’s pathetic

I find Epsom salt baths relaxing on muscles no negative effects. I haven’t managed baths for quite a few weeks tho just shower. The warm water shower makes muscles feel less achy but I reckon the soaking in salts in the bath makes more of a difference. I also take magnesium supplements and it...

Interesting this is being looked at. one of the worst aspects of PEM for me is the impact on sleep, both lack of and delay.

Anyone know if there’s a deadline on this as there is for D Tuller?

I used to mainly use iPad mini (8 inch) but now I have a more recent 10 inch iPad & although it’s a bit heavier I do appreciate the larger display