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https://appgme.co.uk/who-we-are/#members From the APPGME website t is a good cross party group of influential people so I think Carol Monaghan and others have done a good job. Sharon Hodgson spoke for Labour in the Westminster Hall debate and I believe the Commons debate, she was shadow...

Agreed. But there’s also guidelines implementation……

As @Suffolkres has highlighted through posts about Suffolk. NHS structure changes are coming in replaced CCGs. Here’s some info about Integrated Care Boards which are now in place from 1/7/2022 https://www.england.nhs.uk/integratedcare/integrated-care-in-your-area/

Here it is your favourite topic https://www.s4me.info/threads/cbt-repackaged-or-a-novel-treatment-the-lightning-process-compared-with-uk-specialist-medical-care-for-paediatric-cfs-2021-anderson-et-al.21335/

CBT has failed- from one of the horse’s mouths. Sharpe and Chalder will be crossing her off their Christmas card list.

See 1.6 in the Standards in public life holders of public office should be truthful

Yet more embarrassingly outdated thinking

Good grief. Even when I was first diagnosed or undiagnosed I wouldn’t have managed that. I was working 4 days a week when undiagnosed.

for those of us who haven’t managed to watch the video what do the columns represent?

I’ve done hypnotherapy in the past with a few different people. it’s pretty much like a guided meditation with a bit of counselling thrown in. I found that it did make me go to a deep relaxation verging on sleep which felt pretty good during the session and afterwards. The suggestion side of...

I’ve met a fair few overweight people with ME online especially the ones in 40s/50s. There are people at both ends of the spectrum of weight as in the general population. Possibly indicating sub groups of ME? But we don’t know enough about the course of ME and progression, severity...

PNEI?

Many people from specialist professions struggle with this to be fair.

Regular laryngitis over 3/4 years was the thing that seemed to mark the noticeable ( in retrospect) start of my gradual onset ME But laryngitis can be caused by a range of common viruses including rhino, adeno, corona, flu and so on. On one occasion gp thought I had mumps again but the test...

@Simbindi yes and as someone who worked on web content on Gov.UK for a large civil service department I can confirm that we were very focused on clear English for all content whether the audience was the general public or specialists.

I have “met” people with ME and FM on Facebook who have FND diagnosis. One said the Dr at the hospital told them FND was an umbrella term for all the conditions including FM. I didn’t feel I knew enough about the subject to engage in discussion about FND with someone in that situation so I didn’t.

Yes they are a company that produces Computer Based Training on a very wide range of topics so their expertise is taking content they are generally given by a client and turning it into a training package staff can work through by themselves anywhere. It would be interesting to know if they...

Reference to David Lloyd at the end presumably the location for the yoga classes. couldn’t see any reference to MEA so I don’t think they are involved especially when some of the content is incorrect rather shocking to hear the husband say I thought ME was very like MS, physical but no it...

A GP more or less said to me about 5 years ago when I commented that it was my diastolic that’s consistently high that they only focus on systolic

Absolutely @Robert 1973. Simpler - plain - English is not something separate for a dumbed down version of the content for the clever people it is a standard anyone responsible for any content should aim for.