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  1. NelliePledge

    ME Genetics Research Symposium, Edinburgh, 14th September 2022

    Excellent to see the focus on PPI continuing in this event :thumbup:
  2. NelliePledge

    UK healthcare services for people with fibromyalgia: results from two web-based national surveys (the PACFiND study), 2022, Wilson et al

    On a survey they only managed to get replies from 550 people with FM - they didn’t try very hard then.
  3. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    :thumbup::thumbup::thumbup::thumbup::thumbup:
  4. NelliePledge

    London Centre for Functional Medicine: Chronic fatigue

    Hi Linda Maybe worth suggesting to Russell that it would be simpler for someone from ME A folks to just check on here a couple of times a week to see what people have posted rather than people here having to duplicate efforts sending emails and clogging up their inbox. There are quite a few...
  5. NelliePledge

    Long Covid in the media and social media 2022

    Sounds like something Garner would write
  6. NelliePledge

    Long Covid in the media and social media 2022

    is the penny finally starting to drop at the Grauniad??
  7. NelliePledge

    EBV/HHV-6A dUTPases contribute to ME/CFS pathophysiology by enhancing TFH cell differentiation and extrafollicular activities, 2022, Cox et al

    I looked up IL 21 on Wikipedia. As a non scientist what jumped out to me was the use in immunotherapy for cancer and flu like symptoms being a side effect https://en.m.wikipedia.org/wiki/Interleukin_21 in all the time skimming through trying to get the gist at my low level of understanding over...
  8. NelliePledge

    Long Covid in the media and social media 2022

    Yeah massive eye rolls from the whole ME community and wider chronic illness community
  9. NelliePledge

    (Dis)respect and shame in the context of ‘medically unexplained’ illness, 2022, Cheston

    This sums it up for me. My earlier comment on the thread was not shamed just fuming I’m remembering particularly the way I was dealt with by GPs when I was trying to understand what was wrong, what illness I had, the laughing and eye rolling when I said a friend with Fibromyalgia had suggested...
  10. NelliePledge

    UK Royal College of Psychiatrists

    Rebrand of the month
  11. NelliePledge

    United Kingdom: ME Association news

    I think it’s the sending to surgeries that hasn’t been completed
  12. NelliePledge

    Covid-19 vaccination experiences

    Although to be fair in my experience vaccinations for flu and Covid were done in well ventilated places
  13. NelliePledge

    Covid-19 vaccination experiences

    https://www.bbc.co.uk/news/health-62183714 Now announced all over 50s in uk to be eligible for Covid booster
  14. NelliePledge

    What psychological interventions are effective for the management of (PPS)? A systematic review and meta-analysis, 2022, Swainston et al

    First paragraph of background quotes “PPS” as 20% of gp consultations and 52% of specialist referrals @dave30th bete noir of Bermingham also quoted
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