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Yeah it does my head in when people insist on telling me how well I look

This was covered on the main BBC TV news tonight so quite a big reach.

Great result

“seemed in great health” Yeah because people with poor health have never managed to push themselves through a performance on stage before.

Yes Charles Shepherd on behalf of MEAssociation complained to the Advertising Standards Authority about his claims of LP being a cure and he had to change his website wording...

Nauseating

https://www.bbc.co.uk/news/business-60353916 Looks like people around the world are reconsidering their priorities

Oh sorry I missed that

https://www.ageuk.org.uk/information-advice/money-legal/benefits-entitlements/bereavement-benefits/ This may be useful too

Not just physical stuff I can manage to read books one short chapter at a time if I go somewhere else where I don’t have to do those chores. No way I can do that at home.

https://www.gov.uk/new-state-pension/inheriting-or-increasing-state-pension-from-a-spouse-or-civil-partner Here’s the relevant page on GOV.UK hope it is of some help

Maybe just me not registering is this a new LC group? i guess I shouldn’t be surprised as we have a multiplicity of MECFS groups.

Did they give any reasons for the 3 dropping out? also it’s a bit of a bee in my bonnet but I spotted that they had to cut out smoking and drinking. Surely if that was common amongst all these youngsters just doing that will make them healthier after 3 months and if there were more smokers in...

Best wishes for success with this.

2000 in 250k gives an approx U.K. population with CFS or PVFS diagnosis of 540,000 based on 68 million total population

Of course if you’re looking to promote a certain agenda then acting as a troll on Twitter will get you the responses you need to use to get press coverage using your ‘eminence’

So these kids under the ‘care’ of their services , have they considered what the comments from the kids actually says about the effectiveness of their work. Perhaps it should be reclassified as service evaluation rather than research. :whistle:

Nauseating

https://www.nature.com/articles/s41598-021-04764-w This recent paper might be of use. ME Association have a leaflet but you have to buy it to see what’s in it….. If you’ve got a copy of the ME Association purple book there might be something of use in there.

it could actually be ‘something in the blood’ for which there just happens to be an existing drug