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  1. NelliePledge

    BPS attempts at psychologizing Long Covid

    The financial and career benefits of a formulaic approach you can pump out eta with minimal effort, so all your time is available for marketing
  2. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think it’s best to give a short one one or two sentence explanation what’s in the links to try to encourage people to click through.
  3. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Format rather than content suggestion here, unsolicited so please feel free to ignore my strong recommendation would be for a short summary with a couple of key links. Intro video by dialogues and one document, preferably a succinct one. Busy people could well be put off by a long list of...
  4. NelliePledge

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    They also ask people if they would be prepared to do a follow up discussion. Will be interesting to see given my responses whether they take me up. “Interesting” that the only questions they ask about what your experience over the last 2 weeks has been are about mental health, the usual stuff...
  5. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Maybe worth approaching APPG to see if there are parliamentarians willing to work with you on raising this with charity commission or Cochrane.
  6. NelliePledge

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    Tripe is pretty harsh it’s just not a swearword
  7. NelliePledge

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    How do you say tripe in Norwegian?
  8. NelliePledge

    Long Covid in the media and social media 2022

    There was also that excellent brief debate in the Lords not so long ago when the group of Baronesses shredded the newly appointed health spokesman. If anyone is going to contact her it would be worth mentioning Baroness Finlay, Baroness Thornton and the others who spoke as good contacts.
  9. NelliePledge

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    :banghead::wtf:
  10. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    You may care to say that, I couldn’t possibly comment. (Cultural reference Frances Urqhart original uk series of House of Cards)
  11. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Clearly they are as effective at communication as they are at doing reviews :whistle:
  12. NelliePledge

    Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19, 2022, Evans, Chalder

    Absolutely this - wangled her way in just to be sure there’s something to justify maintenance of psychosomatic research gravy train for the future. ££££££££££££. sadly many in the Long Covid sphere may not be aware at all or sufficiently of the MUS psychosomatisation context to be able to see...
  13. NelliePledge

    Ginseng for the Treatment of Chronic Fatigue Syndrome: A Systematic Review of Clinical Studies, 2022, Yang et al

    Odd they don’t include his final words. i doubt it
  14. NelliePledge

    Lightning Process - discussion thread

    Tripe!!!!
  15. NelliePledge

    Physicians with long Covid confront a medical establishment eager to classify their illness as psychological (2022) Tuller

    I’ve not seen it but some info here https://me-pedia.org/wiki/House
  16. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    https://www.s4me.info/threads/uk-all-party-parliamentary-group-on-coronavirus-report-on-long-covid-march-2022.25079/ The ME APPG, supported by Forward ME should provide written evidence to the Lon COVID APPG.
  17. NelliePledge

    UK: All Party Parliamentary Group on Coronavirus, March 2022 onwards

    Observations 1.Strong focus on trying to get Long Covid recognised as an occupational illness 2. there are numerous quotes included in the report, while reference is made to MCAS and POTS there is no mention of ME/CFS 3. Baroness Finlay is a member of this APPG 4. There is a call for...
  18. NelliePledge

    UK company Neuro ProActive

    @PhysiosforME might be of interest to you to see what this involves
  19. NelliePledge

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    Yes agreed just some headlines on what plans to do over the next 12 months would be useful to help me decide on allocating my donation pot for this year.
  20. NelliePledge

    Best chopping tool/food prep gadget?

    Yes @JemPD frozen med veg are my favourites they go with any type of meat, fish or beans to make something tasty. A bit of garlic passata and herbs thrown in its pretty easy to put together a one pot meal. I have a stick blender for soup too
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