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After I finally got diagnosed I tried for 2 years to try to get back to reasonable/consistent level of functioning in my job. A lot of adjustments were made. Nothing of value other than ticking a box came from the CFS clinic PACE light course during that time. People will persist in trying for...

Apologies for an extremely basic question. We know there are issues with misdiagnosis in both including people as ME/CFS but also taking years for people to get an MECFS diagnosis. It seems anecdotally that some people with MS first get diagnosed with MECFS then after a few years get MS...

Good luck with moving home @Valerie Eliot Smith i know from my recent experience how demanding that process can be. I hope it all goes well.

Yes @Sasha We want a moment just like Julia Roberts in Pretty Woman going back to the rude shop assistant “big mistake”

Yeah I agree. The first one was a bit confusing because the colours are similar and then the shapes show the difference

I thought it was pretty good too

I agree Andy for short pieces getting the key message over is all there is time for.

4000 people though

Agree it should be all focused on the study and definitely Chris did a good job of bringing it back on topic. The journalist feeble attempt to spice it up with a bit of populist controversy but Chris didn’t bite. :thumbup:

Flannel = Low content waffle

Done it :thumbup: thanks to all the team for hard work getting to this point.

Yeah exactly, clearly the quote invented by a clueless healthy person who fails to understand the lack of support we receive.

@trudeschei

I would like to see Forward ME pressing for this

Would like to see this on the home page of every ME charity

That image vibe is post coital rather than post viral

Well maybe that’s the difference @Rosie as I have moderate/mild ME so have some ok days and can go out only in crash/flare up I spend most of my time in bed

Agree. To me PEM is from “normal overexertion” a crash/flare up is longer lasting and much worse symptoms than usual.

It’s not like familiar faces is even a more positive term. Just watch any fly on the wall programme about the police.

@dave30th in case you’ve not seen this