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  1. NelliePledge

    Covid-19 vaccination experiences

    Got mine booked on Thursday as it’s now 4 weeks since I got Covid. I’m keen to get it as soon as I can. A couple of relatives one who is badly affected by Parkinson’s have had Covid after me and had already had boosters their symptoms haven’t been as bad as mine and the one who had been...
  2. NelliePledge

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    Well he quotes Sharpe doesn’t he so presumably believes the guy has some expertise I assumed the people he’s quoted are ones he’s actually spoken to.
  3. NelliePledge

    Possible Application of Melatonin in Long COVID 2022, Cardinali et al

    Melatonin helps me get off to sleep earlier than I would do without it under my normal conditions, it has no impact when I have PEM wired insomnia.
  4. NelliePledge

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    Jeff the NY News guy is grumpy because people with 300,000 and 400,000 more twitter followers disagree with his article he’s not bothered about considering whether they have made any valid points just feeling sorry for his hurt pride
  5. NelliePledge

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Diagnosis overshadowing I think they call it. In my opinion because I had minor depression diagnosis contributed to a delay of about a decade in ME diagnosis.
  6. NelliePledge

    In progress: Rehabilitation Therapy for Post COVID 19 Chronic Fatigue Syndrome, 2022 -

    What’s the etiquette on researchers writing to peers if they see studies that are replicating something known to risk harm to participants.
  7. NelliePledge

    Changes after multicomponent group-based treatment in patients with medically unexplained physical symptoms 2022, Polakovska et al

    Yes I agree There are some potential knock on benefits from the validation of taking part in something like this. As well as giving a connection to others in the same boat from the actual programme. Validation can come from the ability to talk to family friends and if relevant colleagues about...
  8. NelliePledge

    BMJ: Activists demand more funds for ME research

    Activist/campaigner I have no problem with these words. I think this article is ok it makes clear the activists/campaigners include broad selection of MPs researchers.
  9. NelliePledge

    Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells , 2022, Gottschalk et al

    They don’t even mention it’s 2 people until the last paragraph. Unless they have work in progress that indicates this is going to be shown to apply in larger numbers it seems naive to use such language.
  10. NelliePledge

    BABCP 50th Annual Conference: Imperial College London 20-23 July 2022

    Must be pretty nauseating for counsellors who don’t subscribe to the CBT as panacea group think
  11. NelliePledge

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    I was tempted but I couldn’t access it through the link presumably as I’m not signed up to Reddit, so my default setting of not touching Reddit with a barge pole remains in tact and I won’t bother.
  12. NelliePledge

    Trial By Error: The Seventh Anniversary of My Initial Effort to Debunk the Fraudulent PACE Trial

    Just about the time I was discovering that the thing wrong with me was ME/CFS and trying to get a diagnosis. only discovered the debacle about a year later
  13. NelliePledge

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Over 500 donors :thumbup: looking hopeful as we hit the end of the month that 100% will be achieved
  14. NelliePledge

    Tonsils, Appendixes, Gall Bladders and ME/CFS

    People of my age in the UK quite often had tonsils removed in childhood. Which is the case for me
  15. NelliePledge

    Effect of herbal cake-separated moxibustion on behavioral stress reactions and blood lactic acid level and muscular AMPK/PGC-1α signaling.. 2022 Xu

    CFS rats, yeah right, what criteria do they meet :wtf: plus all I think of when I see the title is cake made with cannabis
  16. NelliePledge

    UK:COVID-19 Post-Covid Assessment Service

    @CRG is there a link missing
  17. NelliePledge

    Norway: Article about ME seminar with security

    So dropping a coffee cup has turned into throwing a chair? Is this really the same incident? I thought the coffee cup business was discussed at the tribunal and it found there wasn’t anything of substance presented to it about harassment. Like dropping a cup a char falling or getting...
  18. NelliePledge

    Long Covid in the media and social media 2022

    This guy is a journalist for SKY news
  19. NelliePledge

    News from Doctors with ME

    It’s definitely an improvement even with my currently Covid befuddled head I could get the message :thumbup:
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