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I think it’s absolutely right to get this information out to Practices. Its one element of getting change to happen, giving GPs sensible information about ME and highlighting the new guidelines, education package. It may change things a bit for some people. EG People can ask their GP if...

Yes @DokaGirl acronyms using initials are an infuriating sub set of jargon that groups/professions tend to fall into using without realising they are doing it and is a pretty big communication failure in my opinion.

Yes exactly

Nauseating attitude demonstrated in that first sentence How about a rewrite from the patient perspective. It is a Tuesday morning you had a two hour journey and half an hour spent parking and finding your way round the hospital in time for your 11.30 appointment. You are already exhausted by...

Now 8 days since I had mine punched arm only no symptoms. ME wise I’ve been ok. The jab hasn’t affected my gradual return to my normal after my covid infection

Thanks for flagging @JemPD

Ah but it’s ok when they tell us to focus on symptoms just not ok if we decide for ourselves because they know more about it than we do obviously

https://www.bbc.co.uk/news/uk-england-kent-63651536 Teen with Long Covid misses two years of school

They have to come out fighting as the psychosomatic by stealth approach of PACE has lost or at least is in the process of losing its dominance of the agenda. It seems ironically Fink and the radical wing of Psychosomatics have not been put under the same pressure from authority so likely it...

The people who need the intervention are those still pumping out this tripe.

Ah psychological distress the answer to any research question these people consider

Literally they just list symptoms and ask people to what extent they have them.

Fair point @Ravn from what we hear in commentary on the Tour de France road race cycling teams have lots of monitoring data

I managed to drive myself to my booster appointment this pm. Believe it or not it was a Pfizer again so that’s 4/4. Hopefully given I didn’t have anything other than punched arm bit of a headache previously I should be ok. My arm does hurt quite a bit. the session was in a very well...

Wow that’s some determined overlooking

I would think the majority of people living with chronic illness have considerable strengths and it is bizarre that people need to be “encouraged” in order to be able to see that also what is so difficult to understand about patients only going to see GPs about problematic symptoms you don’t go...

Yes @Peter Trewhitt your posts are always pretty useful but this one is top notch and I agree with Trish that the researchers would benefit from reading it.

Shame it doesn’t mention that the request was made because of HRA review.

It’s like so many of these things we’re entreated to do to improve health. Eating kale doing some yoga or as advised by Gerada getting off the bus a stop earlier and walking more, all things that can make a non-ill person a bit fitter. A bit of light meditation can be good if you are a healthy...

Good overall study quality :whistle: