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Two points about making general assumptions about other people with ME 1. people with ME active in forums, on Twitter aren’t the whole ME community - the understanding of science among people I’ve met in Facebook support groups is pretty much that of the general public 2. in the U.K. and...

Google might have been an idea......:whistle:

it is a classic bureaucratic fudge

I support ME Association on Amazon Smile which I reckon is a pretty good option given their support for the U.K. ME Biobank and other research

Oh hang on I think @dave30th has a term he uses to describe this sort of circle:whistle:

That is such a feeble letter by Cochrane. As if it was written by some trainee with literally no understanding of the situation. Doesn’t even qualify as weasel words.

A lot of people with ME on social media aren’t doing advocacy blogs etc don’t represent the ME community in any way probably don’t see themselves as activists just ordinary folks who go there to find information and support. As such in my opinion other than not breaking the limited rules of...

And there we go. Blatant. These people simply can’t help themselves in applying their b s thinking to anything that moves. Needs bringing to the attention of the Long Covid community

Yes. I’ve seen examples of people in the U.K. being innovative in making sure any spare doses are used. Reserve lists of patents to call in at short notice. Using the spare doses to vaccinate the volunteers who help at the vaccination centres etc....

Gargling :wtf:

Awesome point. I must try to remember this.

Interesting what you say about haemoglobin. On the rare occasions I have had blood test the only thing that has been outside the parameters has been red blood cell volume, slightly low at least twice and red blood cell count slightly low or just on low end of range. I’m thinking of getting a...

I don’t think generalised criticism of people with ME on social media who are ordinary folks whose circumstances we can’t possibly know is constructive or contributes anything positive to advocacy.

I think being upset by gaslighting is a rational response. We can’t know individual circumstances and being able to be consistently calm clear and reasonable is a privilege associated with people who are healthy and don’t have all the challenges associated with having a chronic illness...

So I suppose a silver lining is that some long covid people will be having their eyes opened to the thinking behind T Greenhalgh and the influence of the likes of Gerada.

Frankensteins monster

A team- yes you and the missus. Blatant BS

Good news will be hoping for a positive result

well it would appear certain of them are doing an excellent job of undermining themselves

I was actually following her because she was doing some good posts about masks in the spring and I followed her then. I’ve unfollowed her now.