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  1. Alvin

    Trillions Upon Trillions of Viruses Fall From the Sky Each Day

    Scientists have surmised there is a stream of viruses circling the planet, above the planet’s weather systems but below the level of airline travel. Very little is known about this realm, and that’s why the number of deposited viruses stunned the team in Spain. Each day, they calculated, some...
  2. Alvin

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    As i understand you can click on a hashtag and see all the posts made with it, so anyone who wants to learn more would have lots of posts over time show under a particular hashtag
  3. Alvin

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    I see, perhaps they can raise that limit or 2.1 thread/polls?
  4. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    That is possible, though its probably more likely he now sees his work going down the drain and is trying to fight a losing battle to save it.
  5. Alvin

    Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

    I understand, i think my second reply wrapped up my point better, its a good idea to petition congress but right now the party in power believes in taking healthcare away (and tried unsuccessfully) because people with disabilities are contemptible so don't be surprised if you get no traction but...
  6. Alvin

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Typically i would say start with the original list then do a second poll for the top 5-10, but i do mostly like your condensed list so i'm not impartial here. Oh and my vote is for #RealScience4pwME as it would really get under the PACErs skins. :)
  7. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    If confirmation bias that they induced helps them then they will use it, otherwise patients are wrong and what they define as correct is :facepalm: Your original question did not state ME. That said i typically avoid asking such questions because sometimes there is another example your not...
  8. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    His idea is to divide and conquer, if he can make us look bad he will. If someone commits a crime and has the only evidence locked up in their safe and can use the cover of threats to keep it from being subpoenaed then its in their interest to do so. Its not ethical but if they are willing to...
  9. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Indeed, sounds like a Kinsley Gaffe to me. I'm very confused (perhaps better stated as mad), a 1 in 7 treatment rate is pathetic, not to mention they used recruitment criteria that may have treated who knows how many non ME/CFS patients as if they had the disease inflating their numbers. At such...
  10. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    From his point of view his work is being defamed so my guess is he is in survival mode, he is used to being on the offensive not defensive (until now). I suspect he is looking for any angle because his house of cards is in serious danger if he does nothing since it can't stand on its merits now...
  11. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    I agree, these people thrive on finding ways to paint us as bad, so lets not give them one and stay professional He is defending a dying horse he believes in and has an emotional vested interest in. Even when its retracted he will probably still believe, he will just blame us for vexatiously...
  12. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Somewhere the rules stated he had to declare them, be it the university, the journal they planned to submit to, the government or whatever. He failed to fulfill those obligations. I assume he is responsible for his failure no matter the cause, though i don't know what the penalty is supposed to...
  13. Alvin

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    In the end thats the thing, i have no real problem with calling GET/CBT lies or fraud because it demonstrably is. There is little threat implied in calling a proven lie a lie though its not polite. And the second video shows how you can manipulate people (though i have no idea what they were...
  14. Alvin

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    I completely agree, but random chance could have caused it to just hit significance and led us down the road of legitimizing snake oil
  15. Alvin

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    I have no intention of buying this product, you can read my scathing words on the other thread. My biggest surprise is that these good researchers want their name associated with it though it only approaches significance
  16. Alvin

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    Indeed, i am surprised they want their names associated with supplements plus Ritalin. Also we know that many things give us a slight boost for a short period, likely measuring that and selling a drug based on it is a waste of money and patients hope. I believe there have been some threads on...
  17. Alvin

    Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

    I agree, i am just saying right now don't be surprised if it falls flat and don't stop trying if it does.
  18. Alvin

    Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

    I expect they will be told we support you and will get right on that, then make token moves or promptly forget :emoji_sob: Right now is not the time to get results, the party in power believes that people with disabilities are lazy, entitled and worse. That said if this is an annual event then...
  19. Alvin

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    By challenging them we are being impolite, they don't handle well being challenged or funds raised to reveal the truth of their malfeasance. That said perhaps we are not completely disagreeing here, i am a big fan of measured and thought out responses, lashing out without a plan or in a way that...
  20. Alvin

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Thats the thing, being polite is a favour to them, commit an injustice and cause suffering, well we don't want to be impolite in return... I can't agree, if calling someone a liar is too strong the question is too strong for what, they are causing harm, thats strong action. I won't disagree...
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