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  1. Alvin

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    I have to wonder what the hypothesis they are testing is. Is this required to be stated in a clinical trial? I'll be surprised if it makes any sense as we all would but i would like to know. This reminds me of a change.org petition a while back (paraphrasing) its common to name airports after...
  2. Alvin

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Try saying that 3 times fast (forum members should not attempt this) :woot:
  3. Alvin

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Well now its technically 100.395% (presumably before matching) Lets hope it keeps climbing :trophy@
  4. Alvin

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Technically 100.288% :nerd:
  5. Alvin

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I don't know who that is but perhaps 10K is whats in the shopping bag in David Tuller's latest article? http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/
  6. Alvin

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    This wasn't the one that approached significance?
  7. Alvin

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Aye carumba, please tell me thats not a typo or software glitch (since it does not say a name or anonymous).
  8. Alvin

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    I love the hard hitting bluntness of David's articles, these paragraphs stood out in that regard
  9. Alvin

    What is Action for ME's current (March 2018) position on the PACE trial?

    Fair enough, but its very little very late. I assume when we speak of CBT/GET its the deny you have an illness version.
  10. Alvin

    What is Action for ME's current (March 2018) position on the PACE trial?

    Their statement is basically trying to play both sides. They seem to realize that blanket support for GET/CBT is incorrect but they don't want to disavow it, they still think it has merit (or are afraid to denounce it). For an organization that claims to represents patients they are doing the...
  11. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Indeed, its the only plausible explanation :emoji_laughing:
  12. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Interesting. I suspect when they decided to do the PACE trial they really believed in what they were peddling, the numbers started catching up to them so they had to fudge their way to success. Once they realized they could not support their reality denial they had to scramble to save their...
  13. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Most trials are short term, few look for long term effects and most drugs never get tested for long term effects. That said i think there was a followup (or was there supposed to be) who knows what happened there
  14. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    He is grasping for straws, its as simple as that.
  15. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Indeed, though we are coming down to the wire soon
  16. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    Now he is trolling (as if he wasn't before) My answer to that would be yes ME patients can have families, caregivers and sometimes even friends who care about them
  17. Alvin

    Michael Sharpe skewered by @JohntheJack on Twitter

    MEmillitant is very good, an S4ME member?
  18. Alvin

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    Unfortunately there are many diseases that are actually diagnosed by symptoms and have no objective test such as Parkinsons, Alzheimers, Narcolepsy, Depression (as mentioned) and so forth. So it comes down to is it a uniform disease mechanism and how well proven are the diagnosis criteria
  19. Alvin

    Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio

    No worries, just glad to see your hard hitting articles in print :)
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