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  1. Alvin

    Bizarre sleep pattern

    Right, can you provide references? It hasn't been named yet?
  2. Alvin

    Bizarre sleep pattern

    I can tell you that raising PGD2 has no effect on my non 24. And its not hard or expensive to do, its an effect of the niacin flush. Can you tell us what this other sleep center is? mine either, as i said i don't think mine is genetic, but a ME/CFS treatment will be the ultimate test Based on...
  3. Alvin

    Bizarre sleep pattern

    The non 24 in blind people is due to lack of rhythm setting from melanopsin in the eyes. These people typically respond to melatonin supplementation and a subset still respond to bright full spectrum or blue light since its actions are a separate system from vision. That said the neurologist i...
  4. Alvin

    Bizarre sleep pattern

    yes, this i hope i don't get this bad, though i would like to know what the mechanism is, neurologist insists its genetic because all non 24 is genetic. He knows nothing of ME/CFS so i'm not sure how much stock to put in this belief.
  5. Alvin

    Phase III Rituximab Trial - News

    +1 i hope they pursue this, their patients that responded leading them in this direction obviously improved, your improving, something is responsible for that. I love it. However they would spin it to look even worse because they have already decided it can only be psychosomatic
  6. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    They are not, i just like to be very professional when going after institutions that will use every dirty trick against you. I aim to provide no ammunition, it makes her actions look extra bad when they can't even dig up any mud to try to sling. I know its boring, its just how i think, i try to...
  7. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I know what you meant but i wouldn't, making fun of a liar with lawyers is not a smart strategy
  8. Alvin

    (Research) reasons to be cheerful

    So far we have some happenings but there is just too far to still go, a few groups got funded recently by the NIH, and i hope Dr Davis does in the current round. We really need a disease mechanism and biomarker and of course a treatment. We are far behind the dollars and research completed...
  9. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I wouldn't, it would just be material for her lawyers to exploit
  10. Alvin

    Tymes Trust - No reported harassment of staff at Bristol University

    I want to be aggressive... in research, drug development/repurposing and exposing lies :thumbup:
  11. Alvin

    Tymes Trust - No reported harassment of staff at Bristol University

    But then we would have perpetual energy, the liar in the oval office lies so much he would never land :woot: That is catchy ;)
  12. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I hope none would do it but my experience has been some people will stoop to the lowest levels to accomplish their goals. As someone once said its only illegal if you get caught. I hope there are paper trails if they lie to cover for her, makes them look even worse being caught lying yet again...
  13. Alvin

    Help - I bought some cyanocobalamin

    It won't harm you, the amount of cyanide is very small. As @Wonko said if it was acutely unsafe it would already be banned. Biggest risk is your body won't be able to utilize it well, a percentage of people don't seem to be able to convert it well making it inactive (aka waste of money). You can...
  14. Alvin

    Esther Crawley

    I agree, when dealing with power imbalances one has to know how to play the game better then the powerful abuser. It may, its best to understand your enemy when possible because it can lead to more effective strategies. In our case we can understand her motivation and attack it directly or we...
  15. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    They may write one today, back date it and claim it was sent to him. They already appear to lie to protect her so its not unlikely they will do the same again to save their own hides.
  16. Alvin

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    David Tuller is very thorough. I like that :thumbup:
  17. Alvin

    Phase III Rituximab Trial - News

    This is what i am thinking as well, i noticed there seem to be a cohort who have mold intolerance, chemical sensitivities and multiple allergies on the forums, i figured these may be the rituximab responder candidates. I don't have these issues so i'm probably not one of them I hope Fluge/Mella...
  18. Alvin

    Phase III Rituximab Trial - News

    Very disappointing. That said i'm not completely surprised, iirc they tried it on Whitney and it didn't work and he got worse shortly after, it may have actually made him worse (complete conjecture). Then i remember that @Gingergrrl saying she has never had PEM but has been a responder and...
  19. Alvin

    Esther Crawley

    well played :laugh:
  20. Alvin

    Trial By Error: My Brief Encounter with Professor Crawley

    Cool, i've never heard that one before. I recently learned a few Australian ones, spruiking and spitting the dummy.
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