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I did say almost nonsense, Its near term potential is not very high except for a few niche areas. In a few generations it will be huge and the longest journey does start with a single step, so i support such research but would not direct huge amounts of resources away from other research to this...

This is almost nonsense, we do not have the technology to get to medicine at this level. That said we will one day and its not a terrible idea, but if we dump money on it now in a few generations we would get to this level. At this point there is far greater return in spending limited money...

@Liv aka Mrs Sowester comes to mind

They may be the host of the German embassy which is technically German soil? :D

We really need a disease mechanism, it will help immensely in almost every area from smashing the GET/CBT house of cards to a diagnostic test for ME/CFS to research directions to vectors to test treatments against. The fact they are focusing on T cells and genetics suggests this is what they...

If people with ME/CFS are welcome i would go, not sure how i would afford it but i would figure that out later :D

Indeed, David is awesome, glad he is interested in ME/CFS :thumbup:

Reminds me of a Simpsons quote: Because we care about the environment a percentage of our newsprint is made from recycled paper What percent is that? Zero. What, zero is a percent o_O

The speak to your friends is what did it :emoji_grinning: I've read a bit about cult psychology, quite fascinating in a morbid way

Fair enough, i do use a chiropractor because she has done very well for me. I also agree that FDA medications are not the end all of medicine (some are even more harm then help). I won't get into details about my views of "alternative" medicine views here since it would be off topic and a long...

I disagree, If a therapy works then you don't need an adjunct therapy. 57 you say? Yeah this seems to be a common "treatment" to anything without a disease mechanism, ulcers were caused by stress not so long ago, the belief still persists. Heart disease as well :emoji_face_palm: If only the...

And thats my point, making bad laws that liars and reality deniers can use against legitimate scientists is counter productive. You can't improve things by making them worse

It can't work that way because snake oil sells itself as a miracle, otherwise people would stop buying into it. As someone once said there is no such thing as alternative medicine, medication either works or it does not.

You realize this could mean people doing real science could be jailed for going against the "established" narrative. Sending Fluge/Mella and Dr Davis to jail because Ester was making claims years before they got involved in ME/CFS research for example would be insane. The law can be used for evil.

This is a good idea, but the execution is the thing, done badly it could be worse then our present situation and thats terrifying

Interesting, will it pan out in more research is the question.

Yeah this is the problem with snake oil very well explained, people believe in it over science and can hurt or even kill themselves :emoji_face_palm:

I don't agree, if the neurologist believes the CBT/GET crap then your giving them an excuse to dismiss you. In my experience dealing with many, many specialists its best to mention your symptoms, what tests you have had done and ask them to try to get to the bottom of it. The reason this is...

Two reasonable theories. Personally i think both are wrong, As i explained PEM is often delayed and many things happen in our bodies that last day. I've been taking D Ribose to produce ATP which does seem to be part of the disease mechanism but i don't think is PEM since i still get it. That...