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This does not sound believable, and given the replies in this thread i am even less convinced. Making grandiose claims without data that stands up doesn't help anybody.

How about doing both?

Indeed, though i'm reminded of David Tuller being thrown out of EC's presentation, if it were a Nobel laureate it could have made for an international newsworthy embarrassment. They are determined to screw us over, we need to publicly humiliate them with their own lies. Think of it as a...

Very true, but this makes me think, perhaps instead of us "being assertive" we can recruit some doctors to do the same, it won't fly to say other doctors and researchers are sending death threats, it not only carries more weight but if they decide to make those public is will only humiliate them...

I think its more suited to a documentary. Anyone know someone or have contacts to get one aired on national TV?

She uses it, just in the wrong direction. She has a preconceived theory and chases it like a rabid dog, disregarding patients, results and reality to keep her lies afloat. Unfortunately we think of scientists as honest logical beings, we should hope they all strive to be but in the end they have...

I noticed as well but i didn't pay attention to it If we were taking shots instead of eating pudding we would probably all die from alcohol poisoning, a cure of sorts i suppose :emoji_sweat_smile:

We want to argue the merits because we are right but people don't respond to science or common sense (current events for example) so we should change our tactics, start with science and keep going. She is advocating something that claims it can cure cancer by telling patients to believe they...

I'm only able to skim the first part of article at present but reading the first bit made me think of our sleep/cognition problems. https://www.npr.org/sections/health-shots/2017/12/18/571120472/older-adults-forgetfulness-tied-to-faulty-brain-rhythms-in-sleep

Indeed, no matter how many times their lies are laid out for all to see they seem to be made of Teflon :emoji_face_palm: I suspect if they replaced ME/CFS with cancer it would be a very different story...

What are your thoughts on the impaired pyruvate dehydrogenase paper by Fluge/Mella? Do you think there are subsets in ME/CFS, such as those that may or may not respond to Rituximab?

No worries, no harm done

I have no idea :(

I agree, though perhaps we should ask him if he wants to be nominated given the costs/rewards if he wins the poll?

This is a hard one to choose, but i picked Dr Davis because the money would go into research, and he is a scientist who can answer technical ME/CFS questions on air (even better press) :) That said there are many great candidates here, David Tuller was the first name i thought of.

The idea is if we know where it comes form and that its typically reduced in ME/CFS we can try to figure out why and if we come up with some good theories it may help elucidate the disease mechanism of ME/CFS. A long shot but little to lose by trying this angle. I also found it gave some extra...

Interesting, i have tried to look into this without success in the past (when i had some brain power) so now i know it wasn't my inability to concentrate that was keeping me from finding the info, it has not been discovered yet. Also it may help us indirectly because if we know how its produced...

Indeed, this reminds me of this article that i read a while back :emoji_face_palm: https://thinkprogress.org/scientists-avoid-studying-womens-bodies-because-they-get-periods-3fe9d6c39268/

Fair enough, we can't fix every problem, but we could possibly call more attention to ours

Spell check got me :laugh: Fixed