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And Gladwell seems to be the dominant force. He's also on the Cochrane Independent Advisory Group for the new exercise review, and writes materials for AfME.

The Anomalies paper published in 2023 by White et al, and clearly led by White who was the leader on GET in PACE, tries to argue against NICE's removal of GET...

Given that symptoms are what a person experiences and reports, they can say the symptoms are real, but at the same time say the experience is an exaggeration of normal healthy aches and tiredness due to distorted perception of normal sensations as abnormal, and we report effort as abnormal due...

I had a quick look at the survey Action for ME have set up for feedback. It's far too brief and has leading questions. I feel a letter coming on. I'm sad AfME are pushing this. I think it reflects BACME's lack of understanding of ME/CFS, and of scientific rigor. It's all very well saying it...

Thank you @Yann04. That sounds like a valuable resource.

I think the BPS idea is that we aren't really as disabled as we think we are, that we are misinterpreting signals from our bodies. I don't think they have any idea just how sick we are. I suspect most of them have never visited a person with severe ME at home and spent time observing and...

Gladwell is a senior member of BACME, he has also for a long time advised AfME on their documents about ME, including their very lengthy pacing booklet which has been improved somewhat but still, as far as I recall, recommends pacing up. In his role at BACME he's part of their collaboration...

I think that's the problem. It never was a logical explanation of ME/CFS. I think the idea was supposed to be that we aren't actually sick, our ME symptoms are not symptoms of being ill, they are misinterpretations of our perceptions of the temporary effects of deconditioning.

Also posted on the News from the UK thread.

I think if the theory on which PACE is based were purely a deconditioning theory it would be easy to counter with excellent articles like this one by @ME/CFS Skeptic. Unfortunately it's not the sole basis of their theory. Deconditioning in ME/CFS is seen as part of a viscious cycle of initial...

Posting this here for now, since I can't think where else to post it. Cochrane sometimes published comments about reviews which are submitted via their official comments system. There are 3 comments about the 2019 Larun review plus a series of comments about older versions of the review. They...

So first step is pacing. Good. Second step is hand you over to a bunch of therapists. Can be good if it is supportive and the pwLC needs support, potentially bad if they try to contradict pacing with rehabilitation and GET. Most likely outcome is wasting the pwLC's energy and money on useless...