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Alot of the differences are very small, and they don't seem to have corrected for multiple comparisons. I doubt most are clinically significant. This is about chronic fatigue, not ME/CFS.

posted here: https://www.s4me.info/threads/miranda-hart-british-comedian.14390/page-4#post-559220

@Maat, I have no idea whether the Cochrane review has been used by the RCP to support their comments. It was published on 2/10/19, so was available.

Mask, ventilation, air filtration, avoid crowds and indoor spaces...

Thank you.

That's a very clear explanation. Thank you.

Can you give us some clues about what is involved and what you are finding valuable?

I've linked this discussion from United Kingdom: Sussex & Kent ME/CFS Society News

Some discussion of experience with this group here: https://www.s4me.info/threads/what-do-people-want-me-to-ask-sonya-chowdhury-on-friday.40550/page-6#post-558609

Thread: Investigating unexplained fatigue in general practice with a particular focus on CFS/ME, 2016, Bansal

I haven't managed to read all the replies to this. I just want to say, I agree it's a big problem. I'm sure that before my last 10 or so years' experience of learning from discussion with others on forums, I would have been pretty useless as a patient rep advising on resources, even though I'd...

I think it's a really unfortunate coincidence. I gather from recent reviews of a political autobiography that yesterday, 10th October, is the publishing industry's big day for releasing books to hit the Christmas book market. Feel-good recovery stories are a key part of this, and it happens...

No suggestion it was 3-D printed, which I think would be impossible.

As I understand it, the patient group are AfME members. We have no reason to think they are from the Sussex group. This is what Sonya says about it in her recent letter...

I didn't read the article so negatively. It came across to me as someone who was very sick, gradually improved and while improving found joy in plants which helped her feel more positive.

According to the letter I received from Sonya, AfME does have a patient group to provide feedback on their work.

They have got it right about the need for rest. The rest of it - dietary changes - low histamine, gluten free, microclots, cold water therapy, red light therapy, are all anecdotal, and presented here as helping people, but not curative. Is it quackery? It's certainly not evidence based, and...

I'm lost for words. The insensitivity is breathtaking.

Number of patients First visit 175 Second visit 92 Third visit 43 How can they conclude anything about recovery rates when only a quarter of the sample are included?

On this aspect of AfME's work, the recent correspondence with Sonya over the care plan template fiasco may be of relevance. I have just posted Sonya's reply to my follow up letter on the thread...