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I guess that's part of moving health care decisions to local areas. I think the area covered by the Manchester mayor runs its own health decisons, and other areas are increasingly run by mayors with more devolution. And under that there are ICB's. I was never clear what NHS England's role was.

From those graphs, it looks like the treatment group had a significant change at 14 days that was gone by the later days. So a transient change in HRV that wore off fast. I wonder if something about the hope and trying to be well rested at the start of a new treatment affects HRV, and wears...

So they did a test of a treatment for dizziness and it made no difference to the dizziness. So a fail then. But instead they focus the conclusion on other things that did show some between group differences, and don't mention dizziness.

Yet another article getting the cause and effect the wrong way around. So judgemental and harmful. Do these people actually listen to patients, or do they just get them to fill in inappropriate questionnaires.

I am very pleased to see the IAG writing such comprehensive criticisms. Most of the points they make we have already made and been brushed away with scrappy little unsigned rejections. I hope Cochrane take more notice of the IAG.

This part of the letter to pwME seems to me to leave open a new possibility. That says to me that sometime soon after the last version of the protocol was submitted, some BPS people were allowed to see it, panicked, and decided to set up a competing review group to do an update and insist...

I read 'they retained the rights' as referring to the authors. It's ambiguous.

I haven't looked at the protocol yet, but the letters are outstandingly good. Huge thanks to Mary Dimmock and Todd Davenport for sticking with this.

Yes, and not tracking what exercise the participants actually do, and after only 2 months allowing switching from control exercise to treatment exercise, so no long term followup is possible. Apart from the fact that those with PEM are at risk of harm, the whole thing is a nonsense.

Thank you @DMissa. That's a very helpful explanation for someone like me with very little knowledge.

RSV vaccination is now offered in the UK for those aged 75 or over. I had the vaccination a few weeks ago. No side effects at all, not even a sore arm.

I did realise that, just joining in with your analogy, which is a good one.

Surely would only be a very temporary effect. And breathe a bit faster/more deeply? I can make my finger pulse oximeter go from 96% to 98% with a few deep breaths, though don't overdo it, as hyperventilating can make you faint. Alse ensure you're not anaemic.

On harms, see our letter to Cochrane which spells out the evidence with references: https://www.s4me.info/threads/s4me-2023-open-letter-complaints-petition-updates-regarding-cochrane-and-the-cfs-exercise-therapy-review.34973/page-2#post-521800

I'd say there are two ways to drive a car, as fast as you can, pushing yourself above what is safe for the road, weather and traffic conditions, driver's skill and speed limit, and at what is safe for the road, weather conditions and traffic conditions, within the speed limit, and within the...

I guess that depends whether they are looking for immediate effects or gradual or long term effects. If only immediate effects, such as testing a pain killer, then rotating them makes sense. If the treatment is aimed at, for example, long term elimination of PEM that only be judged over several...

Ah yes, I remember reading that blog of yours and thinking what pompous, mansplainy, silly and insulting letters from Riley. I won't say more about how it makes him look, as it would break forum rules.

I would assume the therapists main allegiance would be to their professional body, eg the Royal College of Nursing or the equivalent for physios, OT's and psych therapists. That would be required for things like insurance, act as their union etc. I think BACME is just a self important club for...

Reminds me why I stopped following discussions on FB, including the MEA.

Dated 14th February. Also posted and discussed here: https://www.s4me.info/threads/2025-the-2019-24-cochrane-larun-review-exercise-therapy-for-cfs-including-iag-campaign-petition-comments-and-articles.42305/page-35#post-590812