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Marketing to what end? What is the goal? It is also important not to mix up marketing with education - and it is difficult to educate the public through slogans and media articles...

Can't wait to see Michael Sharpe's TODD talk.

The overall finding is the opposite to the predictions made in several other studies, but mostly the study shows that some patients have higher levels of cortisol (rather than low cortisol) and lower levels of GCr function as a result. Overall the conclusion is spot on: I had previously come...

There is basically no evidence for that hypothesis. There is no evidence for a genuine ME-ASD connection in the published literature.

This is certainly good news. I am glad some attention is being given to adolescents with this illness too (I was 15 when I first became ill). But just one question, how exactly do you do a placebo controlled study of cyclophosphamide? Does the placebo also cause nausea etc? Otherwise it's...

Not necessarily - increasing fitness appreciably requires somewhat intense activity and rest afterwards (you would certainly not be doing the same level of activity on consecutive days if the goal is to increase fitness).

This sounds like the typical modest improvement from initial onset, which usually happens regardless of what the patient does. It sounds like Emma is still ill, unfortunately

The "boom-bust" stuff is total nonsense and not based on any evidence of activity patterns in patients. Certain people like to equate PEM with doing too much, hence boom-bust.

*cough* *blinding?* *cough*

I don't remember seeing such a study published.

From Stone/Sharpe 2005:

25+ hours

Risto Vataja primarily publishes in Finnish, but has been involved in some odd studies: https://tuhat.helsinki.fi/portal/en/persons/risto-vataja(3edeb031-ec17-4c43-b491-61c334c38875)/publications.html "Better long-term outcome for hypnotherapy than for CBT in adults with ADHD: results of a...

Yes. Even the claim in the primer (of 700+ patients) is not formally published in a peer reviewed journal.

I guess they can't claim that "perfectionism" is necessarily "mal-adaptive" when it comes to meaningful outcomes now. :facepalm:

Yes, this strikes right to the core of the ideas by the likes of Fink and others who want to pool all the MUS into a single category and think this lack of specificity is somehow useful.

Cites this "The Sensational Psychosomatic Witchcraft Trials: Evaluating Somatic Symptoms and Initially Unexplained Pain" http://kozachekart.blogspot.com/2016/07/the-sensational-psychosomatic.html Trigger warning: has discussion of violence.

Notice how he doesn't answer any difficult questions about his choices or conduct?

Why do we get these ridiculous press-releases?

Mee too!!!