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I’ve put these on the Trish Greenhalgh thread but sharing here too as they relate to the CG interview above:

I wrote a long post about this in another thread: https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-168#post-318718 Yes, this is one of the reasons why I was disappointed that the GWAS isn’t including people who’ve recovered.

Maybe we need a separate thread for Clare Gerada? Eleanor Morgan is an author and “assistant psychologist” who writes for the Guardian among other papers and magazines: Meanwhile views of the video clip I posted are up to nearly 20k (117k impressions) and seem to be growing exponentially. The...

I’ll just leave this here... And in case it gets deleted, I’ve uploaded a screenshot too. NB I didn’t threaten to complain to the BBC, I complained to the BBC. [Edit to add: I wonder how long it will be before she drops the “death threats” bomb.]

You can only complain to Ofcom if you have already complained to the BBC and received a response that you are not satisfied with. I’ve submitted the following complaint to the BBC via its website. There is a 2000 character limit so I had to edit what I originally wrote. Details of the programme...

Gerada says: “I don’t know what the pathophysiology is but I certainly had problems with my muscles.” There seems to be an inconsistency here. If she subscribes to the CBT/GET models, why does she appear to rule out the possibility that she was suffering from unhelpful illness beliefs? There is...

Sorry I posted the wrong study. Didn’t he do one that followed outcomes up to 24 months or am I mistaken?

Studies Dubbo:https://pubmed.ncbi.nlm.nih.gov/16950834/ Jason: https://academic.oup.com/cid/advance-article-abstract/doi/10.1093/cid/ciaa1886/6048942?redirectedFrom=fulltext

I’m wondering whether to submit a formal complaint to the BBC. @Jonathan Edwards, please can you list a few conditions other than ME which are unequivocally not made better by exercise? Would it be OK to quote you if I submit a complaint?

But, under a capitalist system, it isn’t. If Shell or Esso were able to make more money by doing something other than selling oil they would have a legal responsibility to their shareholders to do that. Eventually all oil companies will stop selling oil. Some will go bust and others will...

As comments below blogs can be overlooked by many I wonder if you, or anyone else (@dave30th @Caroline Struthers @Michiel Tack @Tom Kindlon @Carolyn Wilshire??) might consider submitting your own opinion blog in response, which is likely to be more widely read. I would be happy to help anyone...

I didn’t want to draw attention to PG’s nonsense but I decided to quote share TG’s tweet because I think it’s important that people with long covid (quite a few of whom follow me on Twitter) know her views. Now that there are some excellent replies under Garner’s blog I hope that will mitigate...

Trish, Can I suggest that you post a link below his blog to that article (rapid response?) that I seem to remember you wrote which cautioned about taking too much notice of anecdotal accounts, and (as far as I recall) made the point that when people recover naturally they often attribute that...

As I understand it, there are two separate issues: 1) the general problems with the NHS, and other national health systems for which governments are responsible, and 2) the specific problem of the system’s failure of people with ME/CFS, responsibly for which lies with governments, institutions...

Would definitely need some thought about how to best to organise it. Would be great if the mods/committee could discuss. After reading comments above I’m wondering if we could have a sub-forum which has a main thread where people are asked to share their experience within a word limit. I think...

I hope and suspect that this (if true) has been coming from anti-lockdown idiots but it is unfortunate that she doesn’t specify, having very publicly, and in my view falsely, accused Peter (not Denton) White of malicious representation of her views on ME/CFS and blocked him:

Reading quotes from ME patients in George Monbiot’s article on ME/CFS and long covid in the Guardian gave me an idea: could S4ME set up a thread for people with ME/CFS (and maybe their friends, family and carers too) to post testimonies of their experiences of living with ME/CFS? I know that...

I’ve not managed to read all the comments since my last post yet, so apologies if I’m misunderstanding the point, but I think it’s important to remember the last paragraph and sentence of George’s article (my bold): “We need massive research programmes into both long Covid and ME/CFS, coupled...

Really good, Caroline. Thanks. I loved this: ‘‘But was PACE effectively a “show trial”?’ Not heard that phrase before. Perfect analogy.