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Interesting idea, but I don't think it's one I'll pursue just now. Though, as always, I remain open to help anyone who does.

Yeah, there was self-selection. If anyone is interested I did a 3-part blog on this trial, starting here. https://johnthejack.com/2017/07/02/the-smile-trial-part-1/ I'd forgotten, but I remember now that one adult patient told me that after being persuaded to take an LP course and then not...

I found this fascinating. I've always felt a rhythm to my illness and that my body was doing things at certain times of the day. I haven't done anything in the morning since 1991. https://www.quantamagazine.org/the-bodys-clock-offers-a-rhythmic-target-to-viruses-20190530/

https://lunwen.im/ Type in the box: 10.1007/BF02698479

Article by Fiona Fox in The Times today. https://www.thetimes.co.uk/article/beware-creating-a-moral-panic-about-antivaxxers-jqrmhbtf5 Includes this: This is a familiar theme in the Spiked crowds' view of the world: against anything compulsory, claiming to be on the side of the scientists...

Her list of publications is interesting and includes: Neurotic Citizenship und das Problem der Somatisierung.

https://www.researchgate.net/profile/Emma_Renstroem/publication/333340403_Health_and_Disability_Physicians%27_gender_bias_in_the_diagnostic_assessment_of_medically_unexplained_symptoms_and_its_effect_on_patient-physician_relations/links/5ce7cdeca6fdccc9ddca7ebf/Health-and-Disability-Physicians-ge...

Nauseating.

A recent blog on this paper. https://digest.bps.org.uk/2019/05/13/there-is-limited-evidence-to-support-the-widely-held-belief-that-psychotherapy-changes-the-body-as-well-as-the-mind/

https://link.springer.com/article/10.1007/s11926-019-0823-z

For what it's worth, my approach would be as follows: I would separate the information-seeking from the complaints. For the information, I would contact the REC/HRA and explain that I had requested the info from both authorities and that both say they do not have it. Could they please help...

If so, then I would return to the VC and say Paterson is unable to help and you still have the following concerns...

My own view is that Paterson's response is entirely understandable and that a better approach would be to contact the University Vice Chancellor's office. http://www.bristol.ac.uk/university/governance/constitutionaldocs/senior-staff/pvc-research.html The questions being asked do not relate to...

I think #99 above addresses that better than I can. I just know from what they have been claiming as part of the arguments, they would claim a s12 exemption and that they would likely succeed in making it stick.

I believe that would be rejected as taking too long to provide. There is a limit of 18 (?) hours' work.

They should have been able to make the data correspond.

They are now in the Dropbox folder. https://www.dropbox.com/sh/f3nfolkh1hlw9kg/AACb78M_jA3Q_NoBbnbQsWvXa?dl=0

The original has now been taken down. Nick has created a new file with all the data together, but it the new data is clearly marked in red as not aligned and not to be used as if it were. There is also a new 'readme' file that repeats the warning. The latest files have also been uploaded...

I wonder if the only way really to address this would be by a form of survey, just find out what patients feel helps them, how they feel the best way to cope is, what method they use to manage and perhaps have alongside that some activity survey as well but rather than the sf-36 type something...

That's in his 'CFS' archive. The hysteria one is No.2 in his 'other' archive. http://www.simonwessely.com/index.php/publications/papers/