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Some of my point is merely semantic. I don't see failure to recover as perpetuation. I just see it as an ongoing failure to recover. More generally, I just don't see my illness as PPP, which as I say, seems to be the BPS model.

That was how my virus became ME. I wish someone would investigate what could happen if someone infected by a nasty upper respiratory tract virus continued to be very active, because, for me, that is ME.

My illness has never been a mystery to me. I know when where and from whom I contracted the virus. I know also that in the three weeks following infection, despite feeling unwell, I continued to party and to do vigorous physical exercise and that as a result the virus became ME. I cannot...

Agree with most of comments above. I'm not too keen on Charles Shepherd's adoption of the PPP approach, which seems to me to be a BPS model. I don't believe anything predisposed me to be ill and I don't see that my illness is being perpetuated. No one would say that MS or encephalitis is being...

Yes, I've seen him use this 1/3, 1/3, 1/3 before. He says it's 'using best available therapy', but the same rough guide was being used in the 1970s as a prognosis without any intervention. (Incidentally, I don't suppose anyone else has seen that 1970s quotation and could link me to it, could...

The ICO are still considering the matter. I'll let everyone know once a decision is made.

https://www.nature.com/articles/nn.4643 Just today came across this study from September. Seems interesting to me. "Our study was based on the premise that nerve pathways originating in the spinal cord exert a direct influence on organs involved in the immune system, such as lymph nodes and...

Yes, that's what struck me. But it is strangely worded, as so much about this trial is. I think I'll still use it. I presume she is saying that data as collected are anonymous. Or something.

Interesting. I hadn't seen that COPE before. I was particularly struck by this line: In addition, the data were collected anonymously, which would further exempt the study from requiring formal ethical approval. Am I correct that here Crawley is claiming dispensation from gaining further...

We've tried many times to involve Goldacre but for some reason the former student of Simon Wessely refuses to look at it. He's too busy, apparently. Though not too busy to tweet about harassment of researchers by ME militants.

I have today received the result of the review undertaken by Bristol about the SMILE trial data.. They still claim an exemption. I'll refer it to the ICO. It usually takes about 4 months to get a decision.

I agree with all these comments. Definitely a case of a retweet but not an endorsement.

In Times this morning. Posted for information. It is a sympathetic article by Broadbent. https://www.thetimes.co.uk/article/muslim-fighter-with-me-who-left-an-arranged-marriage-to-win-world-title-svxhhzt57

Yes, it was just deleted from Youtube for copyright reasons.

Yes, the whole response is available here. https://t.co/aEdWadIhC6

I also asked about vexatious: 2. The number of requests refused by UoB as deemed vexatious (only relevant years are shown). 2010 – 0 2016 – 0 2017 – 5 3. The number of requests rejected by UoB as deemed otherwise exempt (only relevant years are shown). 2010 – 3 2016 – 3 2017 – 1 Please note...

I haven't looked through them properly. I don't have any additional documents.

Hehe. I'd recommend some painkillers to get through it. I think actually that is an important point: I suspect she kept the image because of its obvious impact, but continued to claim it was sent to her precisely in order to make the joke. It does get a reaction. (As well as making us...

If anyone is interested, I have uploaded the video. First part (of 2) here:

My understanding is that they will not be. As I said, a third party contacted Gill and Gill has said that he doesn't want to be involved in the dispute.