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  1. Alvin

    Wessely gets touchy feely

    Justifying doing harm while lying about it does not make it ok, no matter how "noble" one claims their origins to be. If one is truly that smart they should be able to see the pain they are purposely inducing instead of victim blaming then inflicting more harm while pretending they are offering...
  2. Alvin

    Wessely gets touchy feely

    This is a great macrocosm of the problem I disagree, the lizard one makes no sense, lizards aren't slimey enough :cautious:
  3. Alvin

    Bizarre sleep pattern

    I have non 24 hour circadian rhythm disorder, likely ME/CFS related and i can poke it with acetyl carnitine which increases levels of acetylcholine which is likely reduced because of lower levels of Acetyl Coenzyme A (Fluge/Mella) There is very little research on how acetylcholine affects sleep...
  4. Alvin

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    I hear liver contains lots of nutrients :wtf:
  5. Alvin

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    I've never heard of Kpax-002 till now. And i wonder why Ampligen won't do the trial the FDA wants, money, something else? And the trial that had no patients should be restarted, i bet between this and the unmentionable forum could we come up with 10 patients...
  6. Alvin

    New Scientist: Blood cells in CFS are drained of energy

    drained may not be correct, unable to utilize, but why nitpick
  7. Alvin

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    Atherosclerosis perhaps, but its mitigation is easy, Vitamin A, D and K2 in sufficient (but not excessive doses). If your wisdom teeth are not removed or unerupted K2 won't be tolerable to you. Stroke should also be decreased by the above vitamins Other forms of heart disease i am not too sure...
  8. Alvin

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    I agree, at this point we are ahead of many of the researchers so they would actually benefit from consulting us until they get up to speed (assuming they actually want to get up to speed)
  9. Alvin

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    I'm not that cynical, progress does happen and we do need to cast a wide net because if we only researched what we know will give the results we want we would not have to research in the first place. However adding intelligence to research will increase the odds of success.
  10. Alvin

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    Reminds me of this, though i assume they don't believe they are doing this https://en.wikipedia.org/wiki/Streetlight_effect
  11. Alvin

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    Basically this, they may find something but adding a change in blood chemistry by pushing the thing that burns us is more likely to show something useful. If anyone knows a way to give them this 'revolutionary' idea please go for it To be honest i don't think what they are doing is going to find...
  12. Alvin

    Anyone get root canal (either before or after ME onset)?

    The K2 will eliminate the pain (except when biting which is physical agitation like jabbing your arm with a fork), but won't easily fix them unless you can take it daily at a high enough dose and with Vitamin A & D. But wisdom teeth not erupted won't work well with K2. I suggest getting a...
  13. Alvin

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    I've been working on analyzing the pyruvate dehydrogenase Fluge and Mella paper, (without a medical degree and with severe neurological impairments) and i would agree, if something is causing signaling to go wrong or is somehow doing the signaling itself it would explain a lot. I do wonder if Dr...
  14. Alvin

    Documents from the SMILE trial

    Can't read the link (works but no brain power) but thats silly but not unexpected, They probably think we are being open and giving you everything, that we deem you worthy of seeing and we will argue meets relevant laws.
  15. Alvin

    Open Letter Seeking Health Equity for ME in Canada! Please sign and share

    I'm not speaking of exceptional access (typically on a case by case basis), i speak of regular approval as we have for any other prescription drug. I have some personal experience i'm not going to get into on a public forum somewhat related to this. For drugs to get approved there is a dance...
  16. Alvin

    Open Letter Seeking Health Equity for ME in Canada! Please sign and share

    Its efficacy is unproven and inconsistent and the manufacturer makes promises then ignores them. Health Canada won't approve the drug because patients ask them to without data and its a dead end at this point. That said money towards research on the disease mechanism would be easier to get...
  17. Alvin

    Tymes Trust - No reported harassment of staff at Bristol University

    This is random but that is amazing penmanship, i could not be that good on large print
  18. Alvin

    Is Cognitive Behavioral Therapy the Gold Standard for Psychotherapy?

    Edited: I don't believe in antidepressants as a cure and alcohol and marijuana are not cures either :facepalm: Very true, its hard to analyze something subjective and there is a lot of money involved. Also our "official" understanding of psychology is practically still in its infancy (with a...
  19. Alvin

    Is Cognitive Behavioral Therapy the Gold Standard for Psychotherapy?

    When they work they are making you slightly high. Peter Breggin calls it medication spellbinding, when a drug makes your problems go away its not fixing anything, its covering it up, slightly better then alcohol or marijuana because your not inebriated. For a second i thought you said...
  20. Alvin

    Microbiome testing reports discussion

    I always suspected this but have wondered why
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