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She did speak about it?

If we could scrape together the money to buy a TV commercial on a popular TV show or during the news one day (Canada day maybe even) I know thats not realistic, or is it?

Amplification is what we need the greatest, how do we make the most impact with it?

You missed her clinician presentation?

She never got the chance to explain the learned helplessness slide, i heard it was not included in the patient presentation. Hopefully thats a good sign, or perhaps it was fear of being made to look the fool.

Since its used by our bodies everyday all of our lives its very unlikely it will just stop working. Also we may have a shortage of endogenous melatonin because its creation pathway includes Acetyl Coenzyme A which is downstream of pyruvate dehydrogenase (what the Fluge, Mella paper said we are...

I doubt this is a slam dunk case.

Slight tangent but i got an e-mail saying its a tax receipt (yea) but being in Canada means my donation was about 25% more then the tax receipt because of the exchange rate. So i wonder if i can claim the amount on the receipt or the amount i actually donated. I will be asking the tax person...

I didn't open any of the links but he might be right, if a doctor makes you worse you won't volunteer for more harm, hence on paper it looks like you needed less treatment. Not exactly a worthy goal, harm patients into staying away from medicine but spin seems to fix anything :emoji_face_palm:

Probably not including the $5000 match which would bring the total to $87,580 :)

Thats disturbing, that therapist should also lose their license and be barred for life. The reason those lawsuits succeeded is becasue We have no disease mechanism or biomarker, only a bunch of test results that indicate that things are awol and a collection of symptoms. So we may win but we...

Indeed, its probably the best idea we have so far, though i would have not been counted 5 years ago when i was less severe and before i had the diagnosis.

It doesn't always work this way, some diseases are more prevalent in some places then others, plus we have no idea what causes ME/CFS so we can't even theorize if its more likely or less likely in a given country. For example Canada has one of the highest rates of MS in the world. Using...

I've given this some thought in the past and i don't know how we would get accurate numbers, many are undiagnosed, the name is crap, doctors are useless when it comes to this disease, there are virtually no specialists in it, we know little about it... So all that being true they still use...

+1 You make a lot of very good points. Also my GP knows nothing about ME/CFS (except that both of her patients that had it spontaneously recovered :emoji_face_palm:) and nether did the many specialists i saw before getting diagnosed :emoji_frowning2:

I'm sorry your hitting so many walls but your doing amazing work, you've got my support :hug:

Split the baby then divide and conquer is my bet.

Are they interested in international members? :emoji_innocent:

good

I've been wondering if they actually have to answer to anybody, what are they exactly?