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  1. Alvin

    Action for ME has joined S4ME

    I would make member only forums for members who are active or actually have ME/CFS or who are not part of agencies that support lies about our condition or try to paint us as militant, vexatious or a population of people who send death threats :emoji_face_palm: And interestingly closed forums...
  2. Alvin

    Action for ME has joined S4ME

    Perhaps i have not explained my position properly, i have not said to ban them or anyone else. Giving access to private information to people who could twist anything they can to use against you is like a fox guarding a hen house. I am not saying don't be nice to your adversary, i am saying...
  3. Alvin

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    It has a robust taste It is a good source but i don't know if you can eat it often enough to counter prednisone induced bone loss, you may need to supplement
  4. Alvin

    How many hours of sleep a night do you need? - Now with Poll

    This is very good to know, i'll try to get some. :) Does anyone know how NAC works for sleep?
  5. Alvin

    House built on old golf course - yes or no ?

    I already live in Canada, though in Ontario :woot: Not really, flooding depends on precipitation or water flow, if your land is lower elevation then nearby land then the right conditions can cause flooding :( That said floodplains and areas that have received flooding in the past are riskier...
  6. Alvin

    Action for ME has joined S4ME

    It would not surprise me either, it only strengthens my arguments The side that makes smart decisions and knows how to fight for its interests. Lets not forget smears, lies, doctored data and alternative facts are extremely effective. If you want to defeat a more powerful adversary you don't...
  7. Alvin

    Action for ME has joined S4ME

    I did not say don't allow patients to join. I ask again why have members only forums if we don't care that those who want to harm us can easily gain access to our personal information to use against us while they block us from the reality of their work to harm us? All we are doing is kidding...
  8. Alvin

    Action for ME has joined S4ME

    As i have mentioned in other threads we should only allow established members to access members only forums and if new members want to become established they can post and tell us about themselves and become active members. This would not be hard to implement though it would add to some...
  9. Alvin

    Five patients made 8,303 emergency calls in a year - BBC News Website

    Basically, this is the MO for the political right in most countries
  10. Alvin

    Action for ME has joined S4ME

    What if they joined so they can read member only posts possibly to be used against us at a later date? Since we are willing to let them do this why do we have member only areas anyways?
  11. Alvin

    Five patients made 8,303 emergency calls in a year - BBC News Website

    I had the same thought, you would think they would figure out in short order that the same person keeps calling and needing services but i suspect this is about using these people as scapegoats to justify public service cuts.
  12. Alvin

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Insurance companies are masters of wearing you down till you quit, or in this case probably trying to steer you away from forcing their hand. They may send you and if you keep asking for systemic fixes threaten to cut you off after you've had a few appointments to keep you under control
  13. Alvin

    Zaher Nahle leaves Solve Me/cfs

    True enough, but its never fun to lose good people. Of course everyone says lets keep in touch (or in this case i'm still working on your behalf) but once he is gone he will have a different mission to fulfill.
  14. Alvin

    David Tuller tours Down Under!

    This thread got this song stuck in my head
  15. Alvin

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    We can deal with that problem later, lets get some real science done first. :woot:
  16. Alvin

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Can we clone her enough times to fill a critical mass of psychiatrist positions worldwide? :woot:
  17. Alvin

    Review article: Does the microbiome and virome contribute to myalgic encephalomyelitis/chronic fatigue syndrome?, 2018, Newberry et al

    I only read your quote @Andy but this strikes me as a fishing expedition. That said without a proven disease mechanism i suppose its hard to do much better.
  18. Alvin

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    This strikes me as a get rich quick scheme. BTW the author has been mentioned on the forum before
  19. Alvin

    Trial By Error: A Letter to Archives of Disease in Childhood

    It doesn't beat the number 42
  20. Alvin

    Members of Congress are coming together in a single voice to stand for ME/CFS. Will your Representative join them?

    Should it not be increase the funding or at the very least maintain the old level?
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