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He mentions at the end of the article Anna Bulley, who is a specialist physio in rehabilitation and chronic illness. Although she advises rest, the fact the word “rehab” is in her title, suggests that if she were to follow a rehab approach to ME as well, then she is following the usual quota...

I just did the same. You know at the top (on mobile) there’s a share link with an email, twitter icon. If you send an email to yourself, it sends with a share token link. And you can get then go into the email and copy the link. I’m just trying to see if there’s an easier way than sending an...

The NHS is facing a “post-viral tsunami” with thousands of people struggling to recover from Covid-19 and experiencing symptoms of the debilitating condition ME, a leading medical researcher said yesterday. Paul Garner, an expert in infectious diseases at the Liverpool School of Tropical...

Not yet..

Yes @Sasha that was my understanding also. Didn’t really understand Dr Van elzakker’s point or what he means about environmental factors, given a lot of research is ongoing in the areas of viruses, infections etc? Prusty for example. Ron Davis looked into infections in blood of patients & OMF...

Dr Van Elzakkar thinks it’s not the best use of money? Edit: I don’t really understand what he means by “clues are screaming environmental factors”, except does he mean viruses? But if so, there are teams looking at viruses, mould, heavy metals already in the US / Germany. (Including Prusty).

Sorry to hijack this thread - but @Jonathan Edwards, do you know what “incidental bilateral proptosis” could mean on an MRI? I had that in mine - on an MRI without contrast. I looked it up & it seemed to be related to eyes and thyroid - but my thyroid antibodies were normal (I asked my GP to...

Whitty saying he “expects” coronavirus to continue to be circulating at a significant level here, even into next Spring... and we can think about it and “regroup” at that time apparently. It’s not just something that happens though is it? It only happens if the govt doesn’t do something about...

Does this mean the draft guideline will be actually published in November for everyone to see, or will they only send the draft guidelines to stakeholders (ie we won’t get to see it) at that time?

Such good news!!

Yes I noticed this too. For people who are apparently so dedicated to the welfare of and helping people with ME...they seem to be remarkably silent about the biggest ME research project ever to have happened...

I know someone who was referred to a neuro psychiatric unit for FND / PTSD and from what I can see it was a place to say.. Even though you have these neurological symptoms they’re not actually caused by anything neurological, we know that for sure... so we can do an “education” course about your...

Merged thread. Note this article is part of the group of articles shown in full in post #13 below. The Times: Chronic Fatigue Syndrome: We wouldn’t agree to make our son worse A social worker wagged her finger at Steve and Lisa Hartley and said: “This is serious, this will be a long process.”...

Wow what a wonderful neurologist! So glad it went well for you and you have some more idea about what the low pressure meant :)

Im really happy to see this. But I also hope in the days/weeks/months to come, that we will get even more articles. And that they won’t just say people are severe for “months or even years”, but for decades or even for life. Bedridden, sometimes unable even to use a commode, some are paralysed...

I shared it on fb and also sent a few texts yesterday to (Non ME) people :) One of the people is someone who lives away from London now but when I told her she said “Finally soon you can have an alternative to being gaslit by the NHS!”. I hope that’s true!

Is there anyone here who feels able to write an email to the Times with the relevant info about why their piece (The ending) was inaccurate / wrong? I know the guardian hasn’t been receptive in the past but the Times might be.

Im pretty sure I found links to articles in the Guardian on another thread re 23andME that showed that 23andME has a 40% false positive rate for at least some of the mutations. How can Klimas draw any conclusions from that type of inaccurate data? edit...

Thanks @Jonathan Edwards. Very helpful :)

Yes... my partner wasn’t saying not to do the research though. He’s very happy it’s funded. He’s just saying he doesn’t want me to get very disappointed/extremely sad incase the study doesn’t find anything, as emotional energy can also affect ME...so I was hoping someone could tell me more about...