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Ohh!! A fellow HP fan! I adore Stephen Fry’s narration. Same for me too, they are my choice when I cannot listen to other things. Have you listened to the other audiobooks: quidditch through the ages, fantastic beasts, crimes of grindelwald movie special, and history of magic?

(If anyone else here likes children’s fantasy or YA fantasy, Or romance fiction please feel free to give me recommendations! - either older books or newer ones as well).

Ok I just realised I didn’t word my question well at all! I mean, which people make up the NICE technical team - what are their names? We have the names of the the committee but not for the technical team.

And this is the “science” behind it. I don’t know enough about the brain to actually pick holes in this. Hope someone else can. https://storage.googleapis.com/curable-www/images/web/curable-poster-chronic-pain_a-cycle-of-stress-and-pain.pdf

Thanks. In this analogy, who are the NICE technician team?

Hi I’m sorry for my late reply, I think I missed this message due to all the notifications that come up - I’ll send you a PM. If you Can tell me what email address to send to, I’ll send over all the documents (handbook etc) and hopefully you can find all the holes in them!

I find this article very problematic and worrying for the reasons people have mentioned. I don’t get their magazine and am not a member so I haven’t seen their other articles. this message of “it’s better to try and fail than not try” etc. It’s very patronising tbh. Tbh I don’t know anyone with...

I use noise cancelling in-ear headphones as can’t tolerate the actual headphones going over my ear and head it’s too painful. The in ear ones are good for me ETA (tbh they don’t really block out all noise. But I can’t tolerate anything going over my ears so haven’t tried ear defenders properly...

I have an audible subscription 24 books a year it’s about £105 so works out to just over £4 an audiobook. I actually get through 24 books quite quickly so keep renewing my yearly subscription early - like every few months or so. I listen to a lot of YA fantasy + romance, I love it so much...

In case anyone thinks I am being horrible at Dr Charles Shepherd, I’m not, I know he is trying to do a lot for people with M.E. but I think when talking about M.E, so often the people with severe M.E are forgotten about. I feel that way. And when it comes to severe M.E I think more specific...

The problem is there is literally nothing I can do without triggering PEM - eating and going to the toilet triggers PEM, moving my legs in bed triggers PEM. And I think he should think about the perspective of the severe as well. Because Dr Charles Shepherd talks in general terms, and truthfully...

So perfectly said. :)

No I think I should be though.

So hang on why does he keep talking about increasing activity levels? This is what doesn’t really help, when we getting this message wherever we look. it’s only all of your wonderful advice on the S4ME forum that has helped me think about it from a different way. Ok but again he’s talking...

Thank you for the really good advice. I wish I had heard all of this 4 years ago and was able to get your advice then! :) I think I may struggle with monitoring my heart because I have an inappropriate sinus tachycardia which means my HR is all over the place even if im actually resting or do...

Oh no please don’t worry! I was not upset because of you. I got upset that I had been somehow once again caught up in Graded exercise - even though that’s what made me so ill when I did it a few years ago. I just didn’t realise this was graded exercise because it seemed so slow and “at my pace”...

Thank you @rvallee - this makes sense. Also it’s made me realise something. All the various things I’ve tried over the years, or heard of - they’re all variations on the same theme, all variations of the NHS / NICE graded exercise programme although they pretend not to be and market themselves...

Thank you Mij :heart: you are right. About the over exertion and constant PEM. It’s so strange I had not thought of any of this in these terms before. Even though I know I get PEM and am feeling very unwell. You have all helped me more than you may realise and it is a great comfort to read your...

Thank you @arewenearlythereyet this was very helpful to read. “I suppose what I’m trying to say is that your ceiling /envelope/stamina threshold may be lower than you think and that what appears as progress is actually a series of small overexertions that eventually come and pay you back.” I...

You are right about the 10% figure. At the time I did not question it because somehow it seemed to make sense to me. Stop fluctuations in activity and “boom and bust.” So the physio told me I was basing my activities in response to my symptoms, and I should stop doing that - so that I have a...