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Hello. Does anyone know on what basis or theory, the FMT trial is based on? I had seen some research from Norwich saying that got micro biome is slightly different in any ME patients than in healthy controls. But why do they think FMT will help symptoms of ME? Is there any evidence that the...

@MerryB sorry I didn't take the right person for the second point in my post above! I have amended the post with your name but don't know if you would get a notification.

@voner thank you much for your reply. I'm glad that I've been describing my types of pain well. It's very frustrating because whenever I speak to the phone on to my GP about it, and even when I tell them I have now become unable to feed myself because of the pain, I hardly get a reaction! But...

Thank you everyone for the for the replies. I am really grateful. @voner would it be possible for you to explain more about what you mean about different types of textures of pain? And to give some examples? This is always a problem I've had in general with describing my symptoms, I find it very...

Thank you everyone for your replies. It's been really helpful and I'm going to note down the medication suggestions to discuss with my GP. I do have an appointment at the pain clinic locally but it's only inanother four months. And I've already had this pain for three months which hasn't gone...

Hi. I would be interested to know what other people do for their pain? For the past few months the whole of my forearms and my wrists and fingers have been in severe pain, following a period of typing too much on my phone, although I didn't realize it at the time. I often get this pain in my...

Also sorry I didn't sign this letter when it first came out, I know I'm too late now, but I agree with everything that was said in it.

Please forgive me for spelling errors, I am typing this fire voice control dictate and I can't really go back and edit a lot of it. I hope the modes don't mind having to edit my posts if it's needed. I think experiences and how people with ME live does have its place in certain circumstances...

I was told by one of the surgeons that my supine measurements were “quite normal”, but if I felt any better under traction (what type of traction wasn’t specified though, or what kind of symptoms I should be looking at), then I could be booked in for an appointment and a consultation and would...

We also, I’m sure, have people who haven’t markedly or dramatically improved following surgery, and we also have people who have got worse after having their heads pulled on. There are also people who probably have no reaction to it whatsoever. No one as far as I can see, is using an end point...

Wow. I mean this is bizarre on so many different levels. I’m just imagining a doctor I know saying something like this and I just can’t. I’m also wondering why if this method of doing traction is indicative of surgery, why is this method not being used in the UK despite there being 5000 fusion...

Hi @Andy I’m Lunarainbow’s mum. She has been wanting to send a few questions to Dr Van Elzakkar for a while now and wasn’t in a state during the past week to even dictate to me. It’s only today she is feeling a bit better and was able to dictate. She asks if you can please include her...

Hi, this is Lunarainbow’s mum. She’s still not feeling well enough to type. She has dictated into the voice to text app and I’m editing: Thank you so much for doing this today. It gives me so much hope things are changing for the better. The videos are really wonderful and very professionally...

Hi, This is Lunarainbow’s mum. She is too ill to type now. I came across this survey and told her about it. She wanted me to post this to alert people. It looks like another bps survey to reiterate that ME is psychological illness. This survey has been posted on ME Support Facebook page by a...

Wow this is so amazing. I don’t know the history of Canadian M.E politics. But as far as I knew it used to be as bad as the UK? Can anyone tell me how there’s been such a big turnaround and what led them to this point? I hope we can expect something like this from the UK

Thank you very much @rvallee for live-messaging everything they’re saying (don’t have energy to follow all).

Just had another look. As it’s a pilot study, I wonder if that means if they find differences between healthy controls and those with M.E (which of course they will), then they’ll possibly do a bigger study at which point they may do home visits for severe M.E?

Yes I agree. On a test looking at sensory processing I am worried as to how looking at milder patients won’t really reflect the reality that sensory processing can become. Is there a way to discuss this with the people doing the study?

I’m glad you had a good experience.. but my test that I did, did cost £760. That includes the initial consultation of £200 which I was told I had to have, before I could have the test. Sorry you are right on the allergy testing being £240 a day. I used to pay for 2 days at a time though looking...

I’ve been told they have a new GP joining at some point as well.