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Just to note - this dates from 2008...

I expect that these frequent callers are people who are frightened by their symptoms - be they physical or mental. It just speaks volumes about how large health systems work that sufficient funding can’t be allocated to a specific purpose like this - to support a small number of highly...

Welcome @chicaguapa and great work!

I’m usually in bed for a good 8-9 hours, but I wake several times in the night. I suspect my actual sleeping time is closer to 6 hours. I’d like it to be more and I think I would feel better if I could sleep through.

So glad this went well - keeping my fingers crossed for your treatment @TrixieStix

Well done @Mike Harley :thumbup: :party::party: :trophy@:trophy@

1404 signatures so far...

And me..

Extreme exhaustion Shakiness Feel too hot in my head - my eyelids sweat... Intolerant of noise, light, movement, smells, touch Nauseous Emotionally labile Sometimes tachycardia Chest pain All over soreness Headache Struggle to process information

Surely the fact that CBT doesn’t work negates the hypothesis for this study?

Nath sounds like he really has learned from listening to patients - I get a sense that he takes ME/CFS seriously now... :emoji_fingers_crossed:

Thanks everyone - for sharing the creepy crawley love!!! Seriously, it’s good to know you get it too..

This is a gradually increasing problem for me at the moment... it feels like tiny insects crawling on my skin - not everywhere all the time, but seemingly random. So far, I haven’t scratched too much because it’s not really itchy - it just feels as though there’s something I need to brush off...

Could that be why so many of us have horrible reactions to adrenaline in injections? (E.g. at the dentist)

But - even if that is the belief - what the data keeps showing is that even if you change what people think, it doesn’t actually change their behaviour. They aren’t more active, they don’t get back to work, they don’t use fewer resources in terms of benefits etc... so that must be seen as a...

Slightly off-topic (which seems to be what my brain does nowadays...), I have a chook who is over 6 years old. It’s been interesting watching her ageing. She sleeps for most of the time, and if I don’t get her up in the morning, she will stay in the coop and then of course doesn’t eat. When I...

Is there no way to actually have some objective measures in a fatigue questionnaire?

I seem to be ok with most things. Some medications are not ok - I had horrible side-effects from what my GP called ‘homeopathic doses’ of carbimazole, and adrenaline in dental injections and gels is awful. I’ve just had some fillings replaced and my new dentist actually listened to me and gave...

@Peter Trewhitt i find my spelling deteriorates significantly when I am feeling bad. I transpose letters/leave letters out etc. Normally spelling is not a problem at all. I am also now unable to read any book requiring significant concentration. I can manage lightweight fiction when I’m feeling...

For me, I think working memory tests would pick up poor performance, and also any tests with competing demands for attention or where there are distractions during a task. Speed of processing is also definitely less... trying to decipher what someone has said when there is music or someone else...