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  1. rvallee

    2021 Pan-Europe ME Patient Survey (EMEA)

    Or RecoveryNorway being Streisand effect?
  2. rvallee

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    When you put it this way... One dominant theme in the literature is how we reject it, they are endlessly frustrated that we are not gullible enough for it. So naturally, convincing physicians is far easier. When it comes to psychosomatics most are endlessly gullible, they accept every claim no...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What's amazing is that in going with denial, this guarantees the worst possible outcomes. Essentially medicine and governments are complicit in making every possible decision at every possible opportunity to make the problem the absolute possible worst while at the same time doing everything...
  4. rvallee

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    We literally know nothing, what is "known" is at best speculation. Quotes like this are so annoying when you see how common they are. What is even the point of pretending? Maybe just so as not to admit to total failure, given that it's the product of an obsessive ongoing effort going back...
  5. rvallee

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    I assume this is to distinguish from generic CBT, since we know the CBT for ME is completely different from, say, supportive CBT for cancer or phobias. Even though it's one of their biggest selling points, that even cancer patients see nothing wrong with CBT, showing how silly we are to refuse...
  6. rvallee

    General thread on functional disorders in Denmark

    I'm not sure where that claim comes from, just that it was funded. The site looks like a crowdfunding platform so I'm frankly not sure what this means. Was hoping someone else knew more.
  7. rvallee

    Editorial: Lancet: "Disability—a neglected issue in public health"

    I mean the BPS overlords constantly tut-tut about the discrimination we are facing, oblivious to the fact that they are its cause, because to them that stigma is not "understanding" their thing, so they want more of it, which leads to more discrimination, which means their skills are more needed...
  8. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This appears to be plan B, Per Fink of course. If it's not the LP, it's basically the LP with a fake mustache. It explicitly refers to the rejected study to justify it. I will safely assume they will actually use the rejection in Norway to emphasize how it's actually more important than ever...
  9. rvallee

    General thread on functional disorders in Denmark

    Copied post from Lightning Process study in Norway - June 2021 - not approved by Ethics Committee, with some moved posts following. A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al has some relevance...
  10. rvallee

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    There it is, after decades of re-runs of the jumping the shark episode, this is running an entire season of nothing but the jumping the shark scene. An actual discussion over "angels dancing on hairpins" that is completely serious and oblivious to its own absurdity. They are discussing this...
  11. rvallee

    UK - NHS England online tool and clinics for long Covid.

    I doubt any such clinic keeps any record on any of those data, at least not in a useful way. I assume this will be similar to the "fatigue" clinics, with every clinic basically doing whatever they feel like doing. But it's good to see activism from long haulers that goes beyond simply hoping...
  12. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It really looks as if medicine intends to bury this entirely and either pretend it never happened or push it in the psychosomatic void of doom. Since it's easy for governments to find medical advisers arguing that, it seems that they did. And since the public message is obviously one of...
  13. rvallee

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    Heads they win. Tails they win. Sideways they win. Never flipped they win. Endlessly spinning they win. Problem is letting them pretend they won despite not playing. The blame is in a system that lets them do that, frankly expecting people to be better than this in any context is plain foolish...
  14. rvallee

    Editorial: Lancet: "Disability—a neglected issue in public health"

    True. Damning. But true. They have one job. This is the job. Damning. Anyone in health care gonna do anything about it? Nah? It's up to patients? Who have no voice in the system? Are systematically belittled and gaslighted often precisely because of the nature of their disability? Noo, let's...
  15. rvallee

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    You got it right. It's not just their conclusion, it's their starting point, assumptions underlying everything. Still is their conclusion, because it's circular logic and the exact same idea behind Wessely's ideology of there being only one "functional disorder", aka the mythical conversion...
  16. rvallee

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Thing is, whenever something shows up on any tests the most common reaction is how this must mean it's not "functional" after all, since by definition functional means no abnormality should show up. This is interesting, though, to pretend that there is physiological evidence for something...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    No one is reliably counting Long Covid yet so no way of knowing without a large prospective study. I'm aware of plans to do so but don't think it's started yet. The CDC have said they have no plans to even consider counting LC. Governments want to open up, LC stands against this and will...
  18. rvallee

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    And this comes from people claiming they effectively manage those made-up conditions with high success. Who readily admit they have no evidence for it. While also claiming they do. Because nobody cares about consistency, that's what happens when diseases are de-medicalized: it's no one's problem.
  19. rvallee

    Efficacy of therapist-delivered transdiagnostic CBT for patients with persistent physical symptoms in secondary care: an RCT, 2021, Chalder et al

    What this shows more than anything is that they don't even trust their own results. They know it's not valid research, it doesn't tell us anything about anything. So they simply dismiss their own negative results, an easy thing to do since they know none of this matters. They're selling a...
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