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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Given that differences in opinion and interpretation have been fractious in the past and a coordinated unified response is required from all ME patient / charity bodies, can a single statement be produced? Divide and conquer may otherwise reinforce the current scenario Where are @Russell...
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    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

    I think @dxrevisionwatch explained it previously, and her warnings were that just this scenario would arise Edit - as posted by @Sarah above
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    from twitter.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Do all representatives have to be British? If you were looking for those with relevant knowledge and experience then choice is very limited in UK. It must be very weird to be outside UK looking in. Do NICE not realise what an act of self harm this constitutes?
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    Cochrane backtracking

    You are aware that the judge who sentenced anti fracking protestors had interests in oil and gas ? Things are not always as we would wish them to be
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    From the same thread and relative to previous review
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    There is very little info given on the webpage and it has a decidedly positive spin which does not seem to relate to comments folliwing on this thread. I have requested that they list the committee members on twitter.
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    A general thread on the PACE trial!

    @dave30th @Eagle . Perhaps something that needs some research and communication before the next Westminster debate?
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    Guardian 'diabetes is biopsychosocial'

    Cynically, diabetes management is coming under the IAPT banner, so this prepares the way.
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    Guardian 'diabetes is biopsychosocial'

    I think we need a picture with lots more tripe for this one...
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    Blog: Lloyd's Fatigue Clinic study asks “are women with CFS ovary-reacting?”

    Perhaps interesting to compare it to the Scandinavian hormone research - will show how things should be done ...
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    Guardian 'diabetes is biopsychosocial'

    Just tweeted to Dr Aseem Malhotra. Wonder what he may make of it ....
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    Cochrane ME/CFS GET review temporarily withdrawn

    Retirement may be the get out. This is Britain, as @dave30th has found out, things are done differently. When there has been a cock up , a huge degree of face saving is involved.
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    Blood test ranges and low blood volume

    Can anyone advise what the effect on " normal range" results low blood volume would have? For FBC, liver function panel and homocysteine I have done a quick google but not much comes up Could this be a factor in pwme tests being read as normal when things are far from this? Our GP is...
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    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    I agree that ME is the body running in an " energy conservation mode". Low T3 would also point to this. Low magnesium/ calcium issues affects cellular pumps, and if ATP is involved in distress purnergic signalling it may compound issues. How each person downregulates, and how this is modulated...
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    Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

    Signed and shared.
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    Association of Use of Omega-3 Polyunsaturated Fatty Acids With Changes in Severity of Anxiety Symptoms: A Systematic Review and Meta-analysis

    interesting - similar findings for autism
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    Dr Alan Moreau's new, low-stress protocol for provoking PEM.[Thoughts?]

    My daughter can inly tolerate 10 mins for neck and shoulder massage. Initial 15 mins try was too much and took a day in bed to get some energy back, so this would seem feasible to me
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    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    True classic !
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    Poll on how supplements affect you - can see results

    Magnesium makes a difference, if it' s missed then its noticeable. Milk thistle and ubiquinol also seem to do something.
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