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    London School of Hygiene and Tropical Medicine - LSHTM 120 keynote lecture: Alumni on the frontline of innovation 2019

    Was infra sound ( low frequency wavelength) not researched as a potential weapon in 1950s?
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    Genetic Links to anxiety & depression (GLAD) study: Online recruitment into largest recontactable study of depression & anxiety, 2019, Davies et al

    MUS bedding in nicely?
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    Eye fatigue

    Eyes " not working" is more a normal situation these days. It is related to energy and effort. Lack of sleep probably adds to this. Pain related I think to muscle tightness ( as well as headache) as facial muscle tightness/ pain seems the norm.these days. Optician noted that eyesight has...
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    Impact of pharmacological agents on mitochondrial function: a growing opportunity?, 2019, Stoker et al

    One of the reasons Ron Davis advises against anti virals ?
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    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    This
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    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Thank you @Trish , and @Action for M.E. it is encouraging that changes have been made. As you say there are still concerns, but this is a welcome step that has been addressed relatively quickly. I hope an ongoing dialogue can inform future input.
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    Is there any systematic research into the “ lived experience” of people with ME?

    I think this may have similar issues to the engagement issues with young people with ME. Communication may be an issue, asymmetric power relationship, and their experience with authority . It's not impossible, but would have to be well thought out.
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes, but if you cannot access testing for differential diagnoses? Here we have standard blood panels, very limited thyroid function testing and not a lot else. Medics with no knowledge and many with no interest in learning. Medics are being directed to MUS pathways. I would love my daughter...
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    London School of Hygiene and Tropical Medicine - LSHTM 120 keynote lecture: Alumni on the frontline of innovation 2019

    https://www.newscientist.com/article/dn14593-wind-turbines-make-bat-lungs-explode/ Air Pressure is a trigger for my daughter - who knows what living near a wind farm may do...
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    Acute effect of strength training on mood of patients with fibromyalgia syndrome, 2019, Andrade et al

    Comments @PhysiosforME ?
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    Should ME organisations do more direct action to get more funding for ME research?

    Demonstrations have to be a bit different to stick in the collective conscience and get coverage. One of the most effective I can remember recently to make a point was disabled people " parking" their wheelchairs in parking spaces to highlight the fact that ise of disabled spaces was widely...
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    David Tuller: Trial By Error: How to Avoid Ethical Review

    nothing to see - move along...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Will PM any responses
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Bristol uni - research ethics tool down ..... http://www.bris.ac.uk/social-community-medicine/people/simon-m-collin/pub/95047718
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    would you like a few posts on parents forums? I take it its Bristol/ Avon area
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    but do any parents have them?? or schools?
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    Tetrahydrobiopterin

    BH4 is the short cut to methionine synthesis if the normal.pathway is compromised ( mthfr mutations being common) Is there an" order" for BH4 function/ use which would compromise other actions if it was prioritised? It strikes me that it's not potentially the I.ia t a couple of mutations for...
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    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    COI
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    SEN Magazine: "ME and you" by Mary-Jane Willows

    The problem with part time attendance is that there is pressure to increase it. It's a bit like GET- there is the inherent expectation that duration and frequency of attendance will increase. We found part time more stressful as there is no 'catch up' mechanism for classes missed in most...
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    People 'more likely to feel pain on humid days' (BBC article)

    Definitely a weather effect . Low pressure is biggest issue - as this is a harbinger of higher humidity it makes sense.
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