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New tick found in north east Scotland From Twitter - new trick in Scotland, never found in sheep.previously babesia venatorum https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/ @duncan @chrisb

Given EC conflates chronic fatigue and PVF with ME it is little wonder that children are not ill as long as adults. There is also the statistical gem , if I can remember correctly, that in paediatrics 80% recover naturally and 80% recover as a result of specialist input. ( I could be wrong...

After months of cajoling my aunt got a home visit from her GP last year. She was basically told that there was nothing the GP could do ( and the GP did not have a clue, nor had they tried to do background research). It left her dejected and slightly bitter ( she is not a bitter person). It was...

Thank you

Do we know how much ME knowledge the exercise specialists at Nottingham (? Currently got funding for ME related research) have and whether they would be in a position to provide a quote?

Sadly i feel that this may only feed into the confusion with BDD. It is far from harmless.

Berberine is expensive - recently recommended a berberine and grapefruit supplement by nutritional therapist to deal with fat digestion and bile issues. Can't find any cheaper than £65/ tub or smaller tubs.

I think it's not the absolute but relative levels that are important. The ratios between eg progesterone and estrogen rather than absolute levels seem to be important in pre menopausal women.

Validation, validation, validation. Seems to be the academic equivalent of estate agent's location location, location...

Service evaluation... Who is pulling strings? This will be very embarrassing when the saga of the emporer' s new clothes finally hits home.

So once again no prominent notice next to very questionable science. What happened to " first do no harm" ( again)

If anyone can find the PROMS scale from the adolescent research to compare with CFQ it may be worth doing. It may flag up if there is a difference when involving those with the illness when defining a questionnaire/ scale ( or not)

I haven't looked at references...bristol/ holland/ Denmark as a guess? When will this narrative change?

Why can't we accept that people are not all the same? Isn't cyclophosphamide pretty risky in itself?

Wood....trees... Life seems to gave been boiled down into parametric boxes to be ticked. In the process of dissection the importance and coherence of the whole is lost. This reminds me of a scene some ten years ago in a primary school playground. There was a group of childminders comparing...

Remember though that severe in paediatrics us being able to attend school for an hour. Otherwise its classed as PRS

My aunts cousin died from sepsis this year aged 67. I don' t know what the underlying trigger was. Felt unwell, brushed off by GP. Felt really unwell a week later and presented at A and E. Rushed in, died around a week later. Is this potnentially another Male/ female split re being taken...

Perhaps that this process had not been done before, and that simple aspects had not been appreciated explains the viewpoint informing the terms of engagement for NICE review for children and young people. Not a clue .

I find this sad. That research has been done for years with no patient informed context. That so little has been appreciated re effects of this illness, as demonstrated by the many changes throughout the process. Any clinician who listens to patients would have had a handle on most of the...

I thought the Havana incident had subsequently found to be related to pesticide use against Zika virus? The place had been doused with 5 times the normal amount to be on the safe side? Perhaps I am confused with something else.